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  • 263. Steps to Launch Your Testing Practice, Part 1

    263. Steps to Launch Your Testing Practice, Part 1

    Would you rather read the transcript? Click here.

    Welcome to the first in a series of episodes aimed at the beginning practice owner! If you’re planning to launch your testing practice, these next few episodes are for you.

    Today, I’m going over the first five steps in my Beginner Practice Checklist. The Beginner Practice Checklist is a simple roadmap for those essential steps to start your testing practice. Here are the topics I cover today:

    • Establishing your business
    • Setting up bank accounts
    • Finding office space
    • Starting your website
    • Setting your fees

    Cool Things Mentioned

    The Testing Psychologist podcast is approved for CEU’s!

    I’ve partnered with At Health to offer CE credits for podcast episodes! Visit this link to access current and past episodes available for CE credit. You can use code “TTP10” for a discount on ALL the course credits you purchase from At Health!

    About Dr. Jeremy Sharp

    I’m a licensed psychologist and Clinical Director at the Colorado Center for Assessment & Counseling, a private practice that I founded in 2009 and have grown to over 20 clinicians. I earned my undergraduate degree in Experimental Psychology from the University of South Carolina before getting my Master’s and PhD in Counseling Psychology from Colorado State University. These days, I specialize in psychological and neuropsychological evaluation with kids and adolescents.

    As the host of the Testing Psychologist Podcast, I provide private practice consulting for psychologists and other mental health professionals who want to start or grow psychological testing services in their practices. I live in Fort Collins, Colorado with my wife (also a therapist) and two young kids.

    Ready to grow your testing services? Click below to schedule a complimentary 30-minute pre-consulting call!

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  • 262 Transcript

    Dr. Sharp: [00:00:00] Hello, everyone. Welcome to The Testing Psychologist podcast, the podcast where we talk all about the business and practice of psychological and neuropsychological assessment. I’m your host, Dr. Jeremy Sharp, licensed psychologist, group practice owner, and private practice coach.

    This episode is brought to you by PAR. PAR has recently released the Feifer Assessment of Childhood Trauma or the FACT, the first and only comprehensive instrument measuring how stress and trauma can impact children in a school-based setting. You can learn more or purchase the FACT Teacher Form by visiting parinc.com\fact_teacher.

    All right, y’all. Welcome back. Glad to have you as always. And as usual, I have fantastic guests here today. I have two guests, Dr. Akeem Marsh and Dr. Lara Cox. They are co-editors of the book, Not Just Bad Kids, which goes [00:01:00] into plenty of background information, suggestions, ideas around kids who have experienced significant trauma, disruptions to attachment, and the dangers of assigning these kids behavioral diagnoses like oppositional defiant disorder and conduct disorder.

    We talk about many things in that world, but we really focus on the downsides of behavioral diagnoses or disruptive behavior diagnoses, in particular. We talk about what trauma looks like, what it does to the brain, how it affects attachment, how that leads to disruptive behavior. We talk about how to connect with these kinds of kids in a clinical setting. We talk about intervention and plenty more. This is a fantastic interview.

    So let me tell you [00:02:00] more about them. Dr. Akeem Marsh has dedicated his career to working with children and families of medically underserved communities. He currently serves as the Assistant Medical Director of The Home for Integrated Behavioral Health, Article 31 Mental Health Clinic of the New York Foundling. And as a member of the Verywell Mind Review Board. He holds a faculty appointment as Clinical Assistant Professor of Child and Adolescent Psychiatry at the New York University Grossman School of Medicine.

    Akeem previously served for many years as an attending psychiatrist with the Bellevue Juvenile Justice Mental Health Service. He’s board-certified in both general and child and adolescent psychiatry. He got a BS from the Prestigious Sophie Davis School of biomedical education CUNY School of Medicine at The City College of New York and got his medical doctorate from the SUNY Health Science Center at Brooklyn Downstate College of Medicine.

    [00:03:00] He completed his residency in general psychiatry and his fellowship in child and adolescent psychiatry at the Zucker School of Medicine at Hofstra/Northwell. And he’s a fellow of the American Psychiatric Association, and a general member of the American Academy of Child and Adolescent Psychiatry. Dr. Marsh also serves as a member of the board of directors of the New York Council on Child and Adolescent Psychiatry and on the editorial board of the organization’s newsletter. This guy’s got a lot going on.

    Dr. Lara Cox is an attending psychiatrist with the Bellevue Juvenile Justice Mental Health Service, providing clinical care to youth in both secure and non-secure juvenile detention in New York City. She has a dual appointment as a Clinical Assistant Professor in the Department of Child and Adolescent Psychiatry and the division of Forensic Psychiatry at the New York University Grossman School of Medicine. She completed her adult psychiatry residency in addition to her child and [00:04:00] adolescent psychiatry and forensic psychiatry fellowships at NYU.

    She is board-certified in general, child and adolescent, and forensic psychiatry. She got her MD and a master’s in clinical research from the University of Pittsburgh after graduating from Kenyon College with a bachelor’s degree with high honors in neuroscience and psychology. Dr. Cox also maintains memberships in the American Psychiatric Association, the American Academy of Child and Adolescent Psychiatry, the American Academy of Psychiatry, and the Law.

    So the two of them have shared these primary interests in terms of clinical care, advocacy, research including the nexus of trauma-related symptoms and disruptive behaviors, trauma-informed juvenile justice reform, and anti-racism in education and practice. Their vision for the future is to create a safe space for, and with youth in the community dedicated to meeting their [00:05:00] needs. So kids who too often must fend for themselves always have a place to go and caring people who will be there for them. They presented together many times and will continue to do so in promoting their recent book.

    As you can tell, these folks have done so much and continue to put so much energy into this area and into these kids. And I’m excited to share that expertise with you.

    So without further ado, Dr. Akeem Marsh and Dr. Lara Cox: Going beyond ODD and Conduct Disorder.

    Hey Dr. Marsh, Dr. Cox, welcome [00:06:00] to The Testing Psychologist.

    Dr. Lara: Thanks so much. It’s a pleasure to be here.

    Dr. Akeem: Thank you for having us. We’re excited.

    Dr. Sharp: Oh, good. Well, I am too. Like I said before we started to record, this is the best job in the world. I get to call up folks who know a lot about stuff that I’m really interested in and just ask a ton of questions and do tons of learning. I’m honored to have you all here.

    I’m really thrilled to be able to talk about a topic that I have discussed with colleagues, supervises, and many folks over the years, this whole idea of diagnoses, behavioral disorders, and how disruptive behavior disorders are not maybe the best way to conceptualize a lot of the kids that we work with.

    So I want to ask, as I always do to start off, what [00:07:00] led you to dedicate so much of your lives to writing a book on this topic? And whoever would like to go first.

    Dr. Akeem: I want to say the kids themselves, kick it off to Lara, and then come back.

    Dr. Sharp: Great.

    Dr. Lara: I would agree with that. I think that is pretty much the answer. The kids that I have been lucky enough to get to work with are pretty phenomenal. And a lot of them have not gotten the kind of care or the kind of attention that they need. And I think sometimes our diagnoses have a lot to do with that. And so we wanted to really bring attention to a lot of the things that are going on in our kids’ lives, and that have shaped the behaviors that we end up seeing.

    Dr. Akeem: And we started off our professional careers working in a juvenile detention setting. So as I came [00:08:00] into it, I’m sitting there thinking like, hmm, what’s really going on here. There has to be more to the story. Something happened in it that we’re not quite getting. And that was the seed that was planted that eventually led to this book.

    Dr. Sharp: Sure. I like that, that process. I think a lot of us probably have that experience where it’s like, there’s something missing here but I just so admire authors, y’all like to actually take that feeling and do something about it. It is pretty impressive. And y’all really put together, I think a really nice book that covers a lot of ground and it gives a lot of good information around this whole paradigm of disruptive behavior disorders and trauma and attachment and everything [00:09:00] that goes into that. And so I’m excited to dig in.

    I wonder if we might just start at the beginning and have you all talk a little bit about the basics around like trauma, how it affects attachment, how it affects our brain or our kids’ brains. Maybe we could start there.

    Dr. Lara: I think one thing that I’ve learned, particularly working in detention, but with some of the youth that I got to work with even before that is just the extent of the trauma and the adversity that a lot of the kids that we see in those settings, in particular, are facing.

    I’ve seen kids who have a trauma history that’s full-page, single-spaced bullet-pointed. And I know, I don’t know anywhere near all of it. And we’re [00:10:00] talking trauma in their homes, in their families of origin, sometimes trauma in placements outside their homes. We’re talking about trauma in the community. There’s one we often talk about the zip code that’s like right around the juvenile detention facility in Brooklyn, and there were between 10 and 12 shootings a month there for the last two years in one zip code. That’s not the thing that we often think about but even if a kid doesn’t see someone directly get shot that affects them.

    Dr. Sharp: Of course.

    Dr. Lara: So there is much more going on than a lot of us who have professional training and careers and that kind of income really appreciate.

    Dr. Akeem: Yeah. And it’s like there are so many layers to it as well. A lot of the things that we put together in the book are things [00:11:00] that we may have learned about but we learned about it as distinct entities. And we’re just like, wait for a second, all of these things are connected. So we started to really view our patients and the kids that we worked with in those contexts. For example, like you mentioned, early childhood trauma and attachment, it kind of starts off there. And every little thing causes changes, some sort of may be epigenetic changes, things like that.

    And if it was just one thing okay, maybe it would cause some mild disruption in the life, maybe not, but then you have one thing after another layered in different ways. And it just gives you [00:12:00] this presentation that you see. A lot of people don’t really nuance, don’t really appreciate all of that. So we really felt it important to add that perspective.

    Dr. Lara: Like, if you think about how does living in a super violent community affect a kid, and then how does that affect a kid who at home, maybe their parent is working three jobs and they don’t have the time to be there to make sure that the kids are at home doing their homework but they also don’t have the time to be there helping the kid process everything that they’re experiencing when they go walk to school every day or in the halls at school, or when they’re out with their friends hanging out in the park. The kid never really gets the chance to learn how to cope with that in a way that is going to be called [00:13:00] well-regulated and able to stay sitting in class.

    Dr. Sharp: Right. I mean, when we think of the primary attachment figure or figures as that safe space, ideally, to help co-regulate with our kids. And that’s a huge missing piece if that person is not available for whatever reason.

    In the course of putting all this material together, do you get a sense of what drives what with these kiddos? Like, is it disrupted attachment that is driving the experience of trauma or vice versa? Or is there any way to even pull determiner a driver?

    Dr. Lara: I think it’s all the things. Non of it really stops, right? If [00:14:00] your attachment is super disrupted from the time you were a very little kid, it often doesn’t stabilize as you get older. If you’re experiencing trauma all the time, that often continues, especially if you’re from a family that has experienced a lot of trauma in the past, and you have these epigenetic changes and vulnerabilities, right? All of that is constantly looping together and feeding into your reactions to other things which then can make you even more vulnerable to more trauma and more disruptive relationships.

    Dr. Akeem: Yes. And then you end up in settings that further traumatize them and it ends up being a vicious cycle all around.

    Dr. Sharp: Yes. Now, this might be one of those super naive, non-intuitive questions but I ask these sometimes on the podcast. Do we know, is there research to say that environments with, let’s say, higher [00:15:00] levels of trauma for lack of a more descriptive term, is that going to relate to attachment between kids and parents? Do we know that? Is there research out there to support that or is it just kind of intuitive?

    Dr. Lara: That’s a really good question. I don’t know that there’s a ton of research specifically on that correlation but think about it logically, poverty and community violence are super linked. Poverty and child abuse are super linked to each other. So, what we call risk factors are all pretty correlated with each other. Ad whether or not there’s research that has been done on that to look at the connection to attachment, I’m not sure. 

    [00:16:00] Dr. Akeem: I wish I could recall a specific article but as you were talking, it just makes me think of certain circumstances, for example, natural disasters, or famines or war where the people who are experiencing that are basically in survival mode. They’re just trying to do their best to get through one day to the next and while that’s happening, as a parent, you’re not going to be able to meet the needs of your child like the emotional needs. You may be able to meet their basic physical but you’re certainly not going to be able to meet their emotional needs.

    And the children themselves being in that environment as well will also be in survival mode. So, that’s going to have a significant impact on the attachment system between them. And then the end result is going to be, [00:17:00] here we are having conflicted relationships on going.

    Dr. Sharp: Of course. Yeah. It just makes a lot of sense. I wonder, before we go any further, if we could just do a little bit of basic education around trauma, disrupted attachment, and the brain. What are these things doing to kids’ brains in terms of emotional regulation, self-regulation relationships, any of those factors? What’s happening when kids go through these experiences?

    Dr. Lara: Well, like we said, a lot of times kids who are living in environments where there’s a lot of trauma and disrupted attachment, their families are also living in those environments. And so their parents have gone through a lot as well. And so it starts off even before the kid is born with epigenetic changes in the ways that their systems respond to [00:18:00] stress.

    So, a kid whose parents have experienced a lot of stress and trauma, their nervous system is basically pre-wired to react more strongly. That reaction lasts longer. It takes longer to calm down to a stressful situation which makes a baby more adaptable and more able to cope with that stressful environment, but it also makes them more fussy “difficult babies”, right? The ones that are difficult for their parents to manage, which can affect the attachment relationship that forms.

    We learn to regulate ourselves both cognitively and behaviorally, but also physiologically from the people around us. So our nervous systems, our sympathetic nervous systems, and our cortisol which is the longer-term response to stress, so if sympathetic nervous system responds immediately in the moment, like within less than a minute, your [00:19:00] system is on go mode. And then your cortisol system takes minutes to an hour to ramp up and a little bit longer to calm down.

    Your sympathetic nervous system is the basic fight or flight mode stuff, and then your cortisol system helps you respond to fight a little bit longer or run a little bit farther. So both of those things are more reactive in a kid whose parents were exposed to a lot of stress and their systems don’t co-regulate as well. So they don’t sync up with their parents’ systems. And that’s how most of us learned to regulate our emotions and our behavior on our nervous systems. So, you’re pre-wired to be more reactive and your system settles down a little bit less easily in response to other people’s [00:20:00] responses.

    Over time, that sympathetic nervous system response stays super reactive. Often the cortisol system becomes less reactive to the kinds of stress we can study in a lab because those stressors that we can study in a lab, obviously ethically, they can’t be all that dangerous. But what we see then is this flattening and people often think of that in relationship to psychopathy but it actually, if you experienced a ton of chronic trauma is also what we see as well.

    Then there are a lot of changes that happen to the brain. So those are the most basic parts of the brain, the things that even rats or mice or animals have as well. And then the more higher-order cognitive parts of our brain change as well, both in terms of emotion regulation, in terms of learning and memory- where we focus our attention becomes [00:21:00] narrowed and focused on in the moment more emotionally relevant information. We also have less cognitive regulation because our brains are so focused on that fight or flight, that need to protect yourself in the moment response that cognitive regulation gets pushed offline a little bit.

    So the more distressed a kid is in, or the more trauma reminders they’re exposed to, the harder time they’re going to have regulating themselves because their system is just in this automatic survival mode, protect yourself. Like we’ll tell kids, use your words, right? A kid who’s been through a lot of trauma may literally not be able to use their words to express what’s going on with them in that moment because their system is just like, you need to survive right now. And they can’t even access that.

    Dr. Sharp: Yeah. I appreciate you laying that out. And you’re kind of walking into [00:22:00] my next question which is, if it’s not completely clear, then just let us know the connection then between trauma, poor attachment, and what we call disruptive behavior, or problem behavior?

    Dr. Lara: So there’s the internal self-regulation physiologic regulation piece. There’s also survival coping, right? So there’s how is your nervous system, your brain, your body reacting? And that is more reactive. You have much more trouble regulating. You have much more trouble using those skills that you might need to stay calm, to avoid getting into a fight, et cetera. And you’re more likely to overreact and defend yourself when you don’t need to.

    But then also, you’re [00:23:00] living in this environment where your basic needs may not be getting met, and you have to figure out how to get them met, where you might be in literal physical danger on a pretty regular basis and have to protect yourself. And so, you learn these patterns as well in order to survive and get through, right? So there’s automatic physiologic stuff that you don’t necessarily have a ton of conscious control over but then there’s also the conscious strategies you’ve learned to deal with this environment that you’re in.

    Dr. Sharp: Yes. I like how you separate those two layers. It is very, for lack of a better word, practical that you may have to get in fights and so forth to protect yourself but there’s this underlying emotional layer too, that just makes kids less able to regulate and more hypervigilant, and so forth.

    Dr. Lara: And that’s tough too because that’s huge, right? If you [00:24:00] are ready to go and somebody bumps into you, then you’re going to interpret that in a much more threatening way than you might if you are walking down the street, somebody bumps into us.

    Dr. Sharp: Of course.

    Dr. Akeem: Yeah. Absolutely.

    Dr. Sharp: So, I think this leads nicely into the diagnostic part of this. So in the DSM, we have a whole section on disruptive behavior disorders, and impulse control disorders, and so forth. Some of those are separate, but I’m thinking about the ODD or oppositional defiant disorder and conduct disorder. This is a very open-ended question, but I trust that it’ll go somewhere between the two of you. I would love to hear just how y’all think of these diagnoses in terms of their utility and accuracy and [00:25:00] how helpful they might be or not?

    Dr. Akeem: Well, it’s like a lot of times the diagnoses just list certain types of behaviors which puts us at a point where you can’t make those diagnoses just based off of feedback without even speaking to the child directly. And the other side of it is like, the context is not there. It doesn’t say much or anything at all about the internal states of the child. So it’s like we have these things here that we’re putting labels on and what is the real reason for it? Like, what is the actual purpose of that? What’s the utility?

    Dr. Lara: And I think [00:26:00] the issue there is that you are actually discouraged in the DSM in some places from looking at the context of those behaviors, like the diagnostic long text for ODD says, basically in certain contexts where these behaviors are in response to the environment, maybe put some more clinical attention on the environment but it doesn’t really say that’s a normal response in this environment.

    And so it continues to pathologize it. And the problem is that because there’s no explanation for those behaviors, the diagnoses become this label of bad kid and they have these long-term ramifications that encourage people to ask even less, to consider what’s going on internally with the kid or in the kid’s life, even less because [00:27:00] here we know why they’re behaving this way. They’re behaving like that because they’ve got ODD. They’re behaving like that because they’ve got conduct disorder. There’s something wrong with the kid. And then they’re more likely to get punished than to get treatment.

    If you look at the effect of a conduct disorder diagnosis in the court system, for example, a young kid who has a conduct disorder diagnosis, juries are, I think nine times more likely to find them guilty than a kid who doesn’t have that diagnosis even with all the other factors being the same. We’ve done some studies.

    Dr. Sharp: Right. I think we’re on the same page here. I was talking to Dr. Marsh before we started a record that I just have a hard time finding the value in these diagnoses. And I’m always looking behind the scenes as to what might be driving these behaviors either cognitively or… [crosstalk] What’s that?

    Dr. Lara: There’s always a reason. We behave in [00:28:00] ways for reasons. All of us do. We are adapted. We’ve got to look at those reasons if we want to help them change.

    Dr. Sharp: Yeah. It begs the question just on the flip side, do you ever see scenarios where it is actually helpful to make these disruptive behavior diagnoses? Like are there times when that is the right path?

    Dr. Lara: If you want to get a kid MST and there’s no other way to do it.

    Dr. Sharp: Okay. And for anybody who doesn’t know, what does it mean, MST?

    Dr. Lara: Multisystemic Therapy is one of the most intensive forms of therapy for a kid with disruptive behaviors. And the thing about it is that it intervenes in every single one of the systems the kids in and their whole family, with their school, if they’re on a sports team with the sports teams, like everywhere the kid’s life touches. So it’s basically treating this context that we’re talking about as much as the kid themselves. [00:29:00] And some places you need to have a conduct disorder diagnosis in order to get into MST. And that would be the reason that I would give that diagnosis and pretty much the only one.

    Dr. Sharp: Yeah. I appreciate you clarifying that. I’m always thinking, and I, supervise a fair number of interns or postdocs and whatnot. And we have these conversations often because it’s easy to default to an ODD diagnosis just based on the behaviors, right? It’s always this question of like, where’s this coming from and what’s this going to help? Or how’s this going to support the kid or the parents for that matter? Does that actually do us any good? I think we’re all on the same page, but I was curious. Are there any times when it might actually be helpful? It seems pretty circumscribed.

    So then we can talk about… I mean, y’all have done so much work with these kiddos. In my [00:30:00] experience, Kids in this world or with some of these characteristics can be really hard to connect with for one reason or another. Has that been y’all’s experience as well? You’re smiling. What’s going through your minds?

    Dr. Akeem: I’m just flashing back to the very beginning when I first started with the, I guess you could say traditional mentality, like, Hey, which is like an authoritarian. Yeah, that’s the right word. It was like, “Hey, I’m the doctor, you’re the patient. You listen to me. I’m here for you. Look at me.” And it’s like, “No.” I’m very quickly realizing that’s just not the way. And then also on the [00:31:00] back of my mind are things like, there something going on with this person but I don’t know exactly what it is and I feel like they could use some assistance, some benefit, but how do I get myself to the point where I could be that person.

    And then the other part of all of that is also like, Hey, I have strong feelings about everyone deserving of some quality mental health services, mental health care. So I also want to be that person as well. So then from there, I started just being curious trying to learn more about their experience, what’s going on with them [00:32:00] using whatever I could to try to make a connection. A lot of them were from the same areas that I had known or grown up around.

    Although interestingly enough, thinking for myself that that was enough, it’s not really because, even though it was the same, it could have been the same area we could have even been living there at the same time but it’s not going to be the same experience because there’s a generational thing like I’m much older than them. And also, their individual worlds are different. Their family makeup is different. The way school is now is different. The music that people listen to is different.

    So it was that bit of a learning curve. And then now, I would say [00:33:00] is at the point where I’m so much better at making a connection and maybe not initially, but at least initially starting the process for making a connection. And it just comes with what we call, be a person. Let me kick it off to Lara, get it, get it, get it.

    Dr. Sharp: How do we be a person?

    Dr. Lara: That is, I think one of the biggest pieces of it. Like Akeem said, when you walk in with this mentality that a lot of us learn in training and in school where you’re automatically assuming that people ought to trust you because you’re the clinician, you’re the doctor, and of course, they should trust you. You have good intentions. That’s why you’re there in the first place, that automatically has the opposite effect for a lot of our kids because that’s not the experience they had with people in [00:34:00] systems, right?

    The people in systems who are supposed to help them don’t. And so if you walk back then, okay, you’re probably not going to trust me and that’s okay. And I expect that, and I don’t take that personally. It becomes somehow much easier to connect. The number of times I’ve looked at a kid and been like, of course, you don’t trust me. I’m some random white lady you met in jail. Why would you trust me? And they start to laugh. And then all of a sudden and[…] is very remarkable.

    And being a person, not being as formal or as rigid about what you will and won’t say about yourself or about other things, I think makes a huge difference. So being a person, being curious, and not walking in just expecting that people ought to trust you. Those are all huge. And if you can do those things, then you connect much more easily. If you [00:35:00] don’t assume that the connection has to be there off the jump, it’s much easier to actually make it. You have to put the effort to build it.

    Dr. Sharp: Yeah. You said something when we were talking before the podcast a few weeks ago that I wrote down, someone, I forget which of you said it, but you said there was no such thing as neutral in these interactions. Can you elaborate on that a little bit? I found that fascinating.

    Dr. Lara: We learned, like that’s sort of like fright and neutrality, right? You’re not supposed to show your reaction to things you’re not supposed to have too much of an opinion about stuff, and you’re not supposed to share about yourself. And if you do those things, then the kid has nothing to form a connection with, right? You’re giving them a blank wall. Why would you connect to a blank wall? I wouldn’t want to connect with a blank wall and I [00:36:00] really don’t trust anyone at all. Why on earth would I trust a blank wall?

    And there’s a way to not have a reaction to a lot of the things that our kids tell us. You can’t not react. Right? Sit there, try to pretend that you’re not having a reaction to a kid telling you about all of these horrible things that they’ve experienced. You lose your own humanity doing that because we can’t shut off our reactions like that. So there’s no way to be neutral and it’s not helpful to even try.

    Dr. Sharp: Right. So the question that comes up for me sometimes when you say we can’t hold back our reactions, I wonder if, I know I’ve gotten caught up in this and maybe some others too, not wanting to react so strongly that it amplifies [00:37:00] the kids’ experience or it makes them think, oh my gosh, this really is crazy. What’s wrong with it? Or something along those lines. I’m curious, and I know this is hard to articulate what’s happening in the room, but I’m curious if you think through that and how you might balance some of that, being authentic but not sensational maybe it’s the word?

    Dr. Lara: I think that’s how to put it. You react and stay well regulated. And one of the whole process, I think of healing is that you’re having these authentic reactions and reacting in a regulated way that maybe the kid hasn’t had a lot of in their life because they haven’t had that stable attachment. So maybe the people that they’ve been around haven’t had the opportunity themselves to learn to be well-regulated or have [00:38:00] so much stress going on that they can’t regulate as well.

    And so if you have an authentic reaction, so the kid knows you really truly do care but you do so in a way that stays regulated and doesn’t freak out, then the kid learns that that’s possible and has an example of how to do that themselves.

    Dr. Sharp: Right. I like them. So the risk of trying to define an organic process may be too much. I wonder if y’all do have other strategies of sorts or ways to be more authentic? That’s a funny thing to ask for.

    Dr. Akeem: Oh yeah. No, that’s a great way to put it.

    Dr. Sharp: Strategies that you bring into the room with these kiddos to help build that trust.

    Dr. Akeem: Definitely. A lot of times actually it starts with [00:39:00] really basic things. And that would basically, be demonstrated interest, showing up for them. Like, in this setting we were working in, we would sometimes just sit with them. If we had time and it’s not like a session, we would come to the hall that they were on and do other things like play cards, or even just hang out and let them know I’m around. I’m interested.

    When we would actually come to our own sessions, we would do things like maybe play some music and then the music that they were interested in which could then turn into conversations about, do you feel like whatever this person’s [00:40:00] talking about relates to you, or what is it about this person that appeals to you? Why do you like this person? And then things can go from there. We’ve also done things like taking advantage of using the internet specifically, Google maps, which has this feature called street view, where you can literally take a walk down the street.

    And we found things like that really helpful because they could take us on a virtual tour of the neighborhood. And in doing that, that often triggers a lot of memories like, oh, this happened over there, or this is a school I had issues at, and all things. And that we’ve learned things about them that otherwise may not have come up or had come up in conversations. You got some thoughts, Lara?

    [00:41:00] Dr. Lara: Yeah. I’m remembering a particular kid walked me down his street and it was, oh yeah, here’s the best place to get breakfast. There’s where my friend got shot. Here’s the best pizza in the whole city. There’s where my other friend got shot. Oh, here’s where I play basketball. Did I tell you I got shot in that park?

    Dr. Sharp: Oh, Jeez.

    Dr. Lara: Yeah. And that kid really didn’t talk a lot about his experience. So it was a really powerful way to learn about what his day-to-day life was because this was literally walking down two blocks of the street in his neighborhood with that. I think being curious and being willing to make fun of yourself does go a long way.

    Dr. Akeem: Absolutely.

    Dr. Sharp: That does go a long way. Kids seem to love that universally when adults make fun of themselves.

    [00:42:00] Dr. Lara: And surprising them. Being willing to acknowledge when you’ve said something dumb or ask the wrong question. Apologizing if you feel like you’ve done something wrong because that’s not something that our kids get a lot of, even if it’s like, oh, I asked that question in a way that you reacted to, and it seems like that upset you somehow, right? If you acknowledge that, that can actually work. I think also knowing when to press and not to press, being like, okay, you don’t have to talk about that if you don’t want to talk about that. And letting the kids know that they can set a limit is helpful. And like you said, reacting but not reacting too much.

    I think [00:43:00] sometimes, assuming that there’s a reason and assuming that they’re coming from a context that’s difficult also helps a lot. If you assume, okay, you’ve probably experienced all. Like the kids in detention have almost all of them experienced quite a bit of violence. And so, if you assume that coming in and talk about that as if it’s normal but not normal if that makes sense.

    Dr. Sharp: Can you say more about that? When you say normal, but not normal, what does that look like in terms of how you talk with them about it?

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    All right, let’s get back to the podcast.

    Dr. Lara: Well, so a lot of our kids will talk about having this laundry list of tremendously violent or difficult experiences and use the phrase regular shit. Pardon my language.

    Dr. Sharp: You’re all good

    Dr. Lara: And that a lot of times I think people assume just means the kid doesn’t care, but it means that this stuff happens so regularly that they [00:45:00] have to act like it’s regular. Or it’s overwhelming. So if you acknowledge yes, this stuff really does happen all the time. It’s true that happens in your life that you’re going through all of this stuff on a daily basis and point out that’s not normal, and, of course, that affects you. That’s what I mean by that normal, but not normal.

    Unfortunately, it happens so often in your life and the lives of the people around you, that that’s “normal” for your experience, and it’s not totally normal as in it affects you and it affects your reactions. And that helps kids make sense of things for themselves because a lot of times kids are like, I must be crazy. There’s something wrong with me. Why did I do this? And they may not connect to all of that because it’s so “normal” [00:46:00] that they think it’s not supposed to affect them, or they’ve learned that it’s not supposed to affect them because boys don’t cry, for example.

    Dr. Sharp: Right. Yeah, they don’t see their peers reacting in any kind.

    Dr. Lara: Yeah, even though internally they’re all reacting.

    Dr. Sharp: Right. I think that gets at something that we talked about before recording, and this idea that you can’t necessarily ask about traumatic experiences in a really straightforward way. We can’t really go down the DSM symptom list and just read them off and have the kids be like, yes, I am hypervigilant. And I thought that was cool the way that y’all conceptualize that. I wonder if we could talk more about ways to get at some of these experiences or [00:47:00] symptoms, I suppose, without directly asking. Can you all speak to that at all?

    Dr. Akeem: Yes, absolutely. It just made me think of the rating scale questionnaire that’s often used that often says like, oh, tell me about your traumas, but then tell me which one was the worst. And like 10-15 things were the worse. So how do I decide? So instead of trying to sort that out, which you can, I’m going to just say nothing’s affected me and just keep it moving and that’s what the kids do, but, oh, sorry.

    Dr. Lara: These rating scales use words like bad and scary, often. Our kids aren’t going to tell you something was scary.

    Dr. Akeem: Not at all.

    Dr. Lara: Then you’ve ruled bad [00:48:00] out just by the way that you’re asking about it. So I think you can ask about the things directly, but you have to ask about something that affected you, right? If you say something intense that you went through that affected you, that’s very different than saying something scary that bothered you. And you’re going to get a very different reaction from a kid. And using the words, abuse, for example, kids may react to it because they know you’re going to have to report that. But if you say some adult that was supposed to be taken care of you hit you, that’s a different reaction that you’re going to get.

    Dr. Akeem: Yeah, a lot of times they’ll frame something like that too, is like tough love or tough parenting. And they won’t tell you that but in like, well, how did they show it? And then when the detail comes out and you’re like, they crossed the line there. Or what else, like in other situations you’re not going to say, oh, tell me about the [00:49:00] community violence? It will like, I feel like you’ve seen a lot of things. I get that feeling and at some point, things will start to trickle out where you get at some of those things. Sometimes it’ll come out in different contexts.

    This brings me back to music. Some of the songs they’re listening to, I feel like often is a way to help process it. Or even sometimes the kids themselves will be writing song lyrics, and then you see things in there and you ask them about it and you’re like, okay, well that happened and that happened. And then that’s like trauma check, check, check.

    And then, as far as the symptoms go is like, well, what do you do about it? These are ways in which this has affected you. They’re not always making that [00:50:00] connection but we can tell like, okay, if I’ve been shot at, I’m not going to go on this certain block or if they got assaulted on the subway or something, I don’t take the subway anymore. I just take a car service.

    Dr. Lara: Or kids will be hyper-vigilant to take the train. So that’s why we see a lot and that’s actually one of the ways that I ask about hyper-vigilance. So, I’ll ask kids, do you take the train? If you take the train, where do you sit? And a lot of our kids will not even sit down on the train because it’s a closed environment, they can’t control it. And if they’re sitting down somebody could come at them. So kids will literally only stand on the side of the car that the door doesn’t open at the next stop. And that’s the only time they’ll sit. And if the car is too crowded, they’ll get off. They will walk wherever they have to go or they’ll take a cub instead.

    [00:51:00] But if you ask, like, are you always on point, are you always monitoring your environment, they’re going to say, yeah, but of course, I am. And of course, they are because people are trying to get them. So that is an appropriate and normal reaction but it could affect their life in some way. Like they can’t take the train or they can’t sit in class or they can’t stand in a line in detention because they can’t have anybody behind them. Then you start getting at, okay, maybe this is affecting you in a way that’s causing you problems.

    Dr. Akeem: And the other thing that I have to chime in to on that note is that this document that Dr. Cox came up with which paraphrases reframes the language of post-traumatic stress disorder into an easily digestible format. So sometimes we will actually take that and show it to kids when we know like, [00:52:00] oh, we just have like a strong feeling that there’s a lot of trauma/trauma-related symptoms going on.

    We’ll share it and then say, take a look at this. They’ll look at it, process it a little bit, give them some time and then we’ll circle back and be like, “Hey, so what do you think, some of the things in there apply to you or how does this relate to you?” And then there’s another way, lo and behold ding ding ding.

    Dr. Lara: Yeah. So I went through and reworded the criteria in the language that our kids use. And I think that was the other thing that I was going to get at here. You have to ask about these symptoms in the context of the kid’s own life, not necessarily in the context that it’s described in the DSM, which I think often assumes that people’s lives are fairly safe and stable and they’ve had this single point trauma [00:53:00] that’s affecting them, but also then in the language the kids use themselves, right?

    So if you ask a kid about nightmares, for example, some of the kids will say, oh, I dream about stuff that’s happened. But if you ask them, if they have nightmares, they’ll say no, because nightmares are things that never happened. It’s not real. So, if you ask about some of the stuff you’ve been through, they’ll say, yeah. And you’ll get this whole story of how they wake up every other hour with their heart racing, a nightmare.

    Dr. Akeem: The other thing too is nightmares imply scary. So it’s like, “No, I don’t have nightmares” Okay, well what do you dream about? Somebody shooting at me. This thing blowing up. This thing burning but that’s not a nightmare. Oh, okay. And then the other side of that coin is, in order for me to actually get myself to sleep, I have to [00:54:00] take a lot of either marijuana or alcohol or the opioid drink called lean. I have to take something external to force myself to knock out because otherwise, I don’t get any sleep.

    Dr. Sharp: Yeah.

    Dr. Lara: Right. And I think that we also don’t think about substance use and avoidance. And so that’s another thing is that a lot of times kids are staying high all the time so they don’t feel what they’re feeling or they don’t have any thoughts and memories and all of those things flooding into their head constantly, or they don’t react super strong and get into fights every 10 seconds.

    And so, they may not be experiencing those things but it’s only because they’re high. And so if you ask them, all right, what if you’re sober? What happens if you don’t smoke for two days? Then all of a sudden you’ve got all of the symptoms, but most of the time when they’re in the community, they may be [00:55:00] using enough that they’re not necessarily experiencing them. They’re not going to report them but that’s why they started using so much in the first place.

    And so, if you think about that as a form of avoidance, then you start understanding what’s going on with them a lot more. Whereas if you don’t think about it, then you miss the whole trauma-related experience that’s happening before they started using in the first place.

    Dr. Sharp: Right. Well, and that’s just another example of a descriptive diagnosis that doesn’t necessarily help us a whole lot. It’s like you could say, oh, that kid’s smoking weed 4 times a day, every day could be a substance use disorder or maybe it’s an avoidance tactic.

    Yeah. I just want to highlight that. I’ve never really thought of it that way, though it does make sense, but to think of it, [00:56:00] it’s not just like avoiding that certain block or that part of the playground or whatever it might be. Substance use totally takes you out of the feeling. And that makes a lot of sense. I appreciate that perspective.

    Dr. Lara: And the way that kids don’t necessarily tell you that that’s why. So one thing that I’ll ask sometimes, it’s like, what do you like about how you feel when you’re high? And then they’ll tell you that pretty readily. And so then you can either be like, okay, so how do you feel when you’re sober or say, oh, so is that the only time you feel that way and get at that negative difficult emotional experience that’s happening when they’re not using which they wouldn’t have told you spontaneously.

    Dr. Sharp: Yeah. As we’re talking, it’s one of those moments where, again, it seems obvious but just the willingness to go beyond [00:57:00] the surface, and go beyond maybe what we were taught in grad school, that rote interviewing method. Just let the walls down a little bit and really get in there with kids.

    Dr. Lara: Yeah. If you assume that there is more going on than you see or that you’re going to hear at first, that’s the key. There’s something going on. There’s a reason that you’re seeing what you’re seeing. And that’s the fundamental assumption I think is that it makes sense. Like whatever you’re seeing makes sense in the context of the kids’ internal experience or of their life. And so, to help figure out how it makes sense:

    A) You understand what’s going on with them.

    B) You can help them understand what’s going on with them which in and of itself is super helpful.

    The number of times I’ve handed a kid these rewritten diagnostic criteria, and they’re like, [00:58:00] oh, that’s why I’m doing that.

    Dr. Sharp: It can be validating.

    Dr. Lara: It’s hugely validating. And if it makes sense to them, if they’re like, oh, that’s why I’m doing that. I’m not crazy. I’m not bad. It makes sense, in the context of my experience, then you have a way to help them have some hope and help them see that it’s possible to do something different.

    Dr. Sharp: Well, I think that’s an awesome segue to treatment and intervention that actually work or maybe work. Before I totally transition though, I know people are screaming out there. They’re like, where is this document? So just to be clear, can people find that translation document that you keep talking about putting the PTSD criteria into more of that.

    Dr. Lara: It’s something that I put together in a word doc. I’m happy to [00:59:00] email it to you and let you share it with people.

    Dr. Sharp: Okay. So it’s not a book? 

    Dr. Lara: No.

    Dr. Sharp: It’s separate. Okay.

    Dr. Akeem: I feel like it should be, but we had to take the space that we needed for things, so.

    Dr. Sharp: sure. Okay. Can we talk about intervention and what y’all have found? I know we have like our evidence-based practices and then there’s other stuff. I’m curious. What are y’all’s thoughts on what actually works with these kids?

    Dr. Akeem: Awesome. So I think at the core, it goes back to everyone meeting a person at least one stable person in their life to help reestablish the sense of safety and security in themselves, but also in humanity. And [01:00:00] then the individual person has to regain a sense of control over their whole body because with the trauma and disrupted attachments and everything, it’s like people really lose a sense of themselves. So, the core is really recovery. Other than that, everything we see, if it’s is the evidence-based practice or “non-traditional”, those are all different types of pathways to get to that point.

    Then to build on that is like, there are things happening in their lives, right? So we’re talking about youth. They’re all part of some sort of family unit. So as [01:01:00] long as the family is not too toxic or too… Well, you know what, let me backtrack a little bit. They have their biological families but then they also sometimes will have an adoptive family. Between the two of them, hopefully, one of those is actually really supportive, loving, nurturing. And if that’s the case, work towards building that up.

    And then a lot of times with the overall presentation, with the kids, we’ll see other issues that are going on like calling back to our conversation before we started the podcast with kids having some apparent education needs that may not be met. So, we’ll see, okay, they [01:02:00] need more comprehensive testing to identify those needs and then address those needs with appropriate services, speech therapy, occupational therapy. The other things that could be used would be things like, I guess some of the evidence-based treatments would be like parent management training. That’s like working with the parents. If they’re younger to try to really get them essentially approved the relationships. That’s what it comes down to, to be honest.

    Dr. Lara: Yeah. I think that idea of having a person is one of the core pieces of it. And trying to be a genuinely caring, authentic human being in this kid’s life is one of the most [01:03:00] important things and all the rest of it is like tools in your tool belt. So some kids are going to need medications. Some kids are going to need specific trauma-focused therapies. Some kids are going to need something else and it all stems from that relationship. And if you don’t have that, then all of those tools are useless.

    I think also thinking about the kid’s context is super important because if you’re only treating kids, so you’re treating the kid, great. You’re intervening and the kids still can’t walk out their front door to go to school because they’re going to get shot if they walk down the block, that’s useless. If they still got to rob because their mom can’t pay rent and so they’re going to get evicted and they’re trying to contribute, then your trying to get them to change that behavior isn’t very helpful because those needs still need to get met somehow.

    So [01:04:00] you have to look at all of those contextual factors as well as the kids themselves in order to try to intervene. And I think Dr. Marsh’s point in speaking to the whole audience of the podcast about assessment and testing, a lot of the times kids may have an undiagnosed learning disability, or they may be really bright but they got into trouble so much when they were little. Starting from the time they were little, they missed a ton of the information that they would have needed to be at the same pace as their classmates.

    And so then they get tracked into a special ED class because they can’t academically perform in a way that’s consistent with their intellectual capability, but they’re beyond bored because they’re super bright. They just don’t know the stuff that they would’ve needed to know. And so then checked out of school because they thought they couldn’t do it even though they’re incredibly intelligent.

    And so understanding the kids’ needs and capabilities in terms of the [01:05:00] educational setting is huge and finding ways to actually meet those and maximize those capabilities. Because a lot of times, I’ve seen so many kids who are incredibly smart and incredibly capable, but they think like, oh, I can’t do school. Or they even think like, “I’m dumb,” but that’s not true. The opportunity wasn’t there or their needs weren’t recognized. And so,  they didn’t get what they needed to perform at their capabilities or to get super engaged.

    Dr. Sharp: Right. I love that you’re speaking my language now, the testing and assessment component. I think one of the best parts of the job is being able to dig in and find kids’ strengths and communicate that to them, especially in those cases where they don’t have that opinion of themselves.

    [01:06:00] Dr. Lara: Which is almost always all of our kids.

    Dr. Sharp: Right.

    Dr. Akeem: Absolutely.

    Dr. Lara: The other thing about these diagnoses and about the way that we talk about is that I’m a bad kid gets so internalized.

    Dr. Akeem: It’s not just the people around them. It’s also like messages that you get from society. It’s just constantly reinforced.

    Dr. Lara: Like the media.

    Dr. Sharp: Yes.

    Dr. Lara: Unfortunately, there’s been a lot of gun violence in the city lately, and sometimes a kid will get shot and the article will be about their rap sheet.

    Dr. Sharp: Right. What’s going on here?

    Dr. Lara: And so then, why would a kid think that anybody cares? My friend just got shot and they’re talking about his criminal record. They’re not talking about his child or his relationship [01:07:00] or how well he was actually doing right now. It’s all the things that he did in the past. That gets so internalized and makes kids think, why would I care? Why would I try to change?

    Dr. Sharp: Right. Yeah, that whole idea, I mean, we didn’t talk much about the idea of stereotype threat or self-fulfilling prophecy idea, that’s huge and this whole discussion, right? Is that these kids:

    1)We have pretty good evidence, right? Kids of color are more frequently diagnosed with behavior disorders than white kids. And then you throw in this whole stereotype threat piece and like, what am I supposed to be? What do other people think of me? And it is so heavy.

    Dr. Akeem: And the kids are very [01:08:00] sensitive to that, sensitive and reactive to it.

    Dr. Sharp: Well, of course. Getting back to that component, is there a way to build or identify strengths, change that narrative a little bit?

    Dr. Lara: And I think that’s one of the things in being a person is looking for those things that a kid is good at and mentioning them all the time.

    Dr. Sharp: Right.

    Dr. Lara: Not in a way that feels forced or fake, but that is like, wow, that was really funny. Or I noticed how you looked out for me. Somebody slammed the door open and you were looking to make sure that I was good. All those kinds of things in the moment are super helpful because [01:09:00] they don’t get noticed for that stuff. The stuff with a problem gets picked up but where they’re really kind of sweet or going out of their way for a friend, don’t get noticed.

    Dr. Sharp: Right. We talk about this so much and it seems so obvious, but I think we have a hard time with this. It’s like getting into a different mindset and reframing behaviors and characteristics to be more positive and adaptive. It’s so easy to get lazy and not do that.

    Dr. Lara: For example, there was a kid I knew who stayed away from the place that he was supposed to be overnight. He stayed with his friends and I think they stayed in the [01:10:00] project stairwell. But the reason that he did that was that his friend was super wasted and he didn’t want his friend doing that by himself and his friend didn’t have a place to go. So instead of going back to the place where he had, where he could’ve stayed overnight and then in a fairly safe place, he’s stayed with his friend in the project stairwell because he wanted to make sure his friend was okay. But most people just would really notice that he didn’t go where he was supposed to be that night and not figure out why. And the fact that that was actually a really kind and loyal thing to do.

    Dr. Sharp: Right. And if you’re not thinking about that, it’s like full circle now, here we are at that criterion for conduct disorder, runs away from home, like, oh, it’s that.

    Dr. Lara: Yeah.

    Dr. Sharp: I just want to hammer that home so clearly that there are different ways to interpret behaviors. And I think it’s our job as clinicians to do the work, to get behind and find some of [01:11:00] the motivation for these behaviors. I know I’m preaching to the choir here and we’re all on the same page, but it’s important. We can’t take things at surface value.

    Dr. Akeem: No.

    Dr. Sharp: Oh my gosh. So let me see. We’ve talked about a lot of different things. I know y’all go into so much depth in your book on these topics and many others. Is there anything else that you feel like we have not touched on that you definitely want to mention or help folks understand before we wrap up today?

    Dr. Lara: Our kids are pretty amazing and it is a privilege to get to discover the ways that that’s true. If that’s how you approach it, then you have an advantage in being able to intervene helpfully in a way that [01:12:00] a lot of the time our field doesn’t have.

    Dr. Akeem: Yes, absolutely. I echo that sentiment. If you’re willing to go there, there’s a lot that potentially could be gained from the experience and it really has the power to transform lives, have an impact. I would say our lives have been transformed more than theirs, but some of them may tell you otherwise.

    Dr. Sharp: Well, it’s clear that this work has had an incredible impact on y’all and that comes through pretty clearly. That’s pretty amazing.

    Dr. Lara: I was going to, I think the word that we haven’t used yet, and it’s not one that we often use professionally is love, but that’s the key.

    Dr. Sharp: Sure. [01:13:00] I can get on board with that. I can.

    Akeem: Love, love, love.

    Dr. Sharp: And I just want to say, I’ve been thinking throughout our interview, y’all work with kids that are in pretty, I would say, risky, dangerous situations right? That’s been y’all’s work. And people out there might be saying, oh, I’m not working in the city. This is not super relevant but I think the themes though, you can easily downward extend to less “risky situations”. It’s just like the idea that kids are doing the best they can, and it’s our job as clinicians to get in there, speak their language, be human, and look through these different lenses when we think about their behaviors.

    Dr. Lara: What they’re doing makes sense in their context. And if we think about [01:14:00] what would we have done in that circumstance, kids are really, like you said, trying to do the best that they can in the situations that they’re in with the resources and the options and the knowledge and the backup and the skills that they have available. And being able to identify that and then help meet the needs so that they can do something different, I think you can extend that to pretty much any situation.

    Dr. Akeem: Yes. And as you were talking just now made me think of something that comes up, what happens a lot in our society where folks often compare themselves to others, and then you have the kids that we work with comparing themselves to other people who are maybe successful in different ways and wondering why did I turn out this way and they turned out that way? And then I’m just like, well, in life, we’re all given a [01:15:00] deck of cards and it’s like, you just got a really bad hand in some ways compared to these other people. There are a lot more different types of hurdles you would have had to overcome compared to them. So it’s not even a realistic expectation for you to meet the same perceived success that the other person has.

    Dr. Lara: And if we help change the cards you got in your deck, then maybe you will be able to.

    Dr. Akeem: Yes.

    Dr. Sharp: Right. Well said. Y’all, I’ve greatly enjoyed this. I’m just thankful that you were able to give me a little bit of your time. I know it’s close to the holidays and you’re busy folks, but this has been a lot of fun and super informative. So just one more time. Thanks again for being on the show.

    Dr. Akeem: Oh, thank you so much for having us.

    [01:16:00] Dr. Lara: Agreed.

    Dr. Sharp: All right. Y’all thank you for tuning in as always. I hope you found that helpful, informative, and even a bit entertaining. I loved talking with them. They clearly know their stuff, and gosh, I’ve just been doing the work for so many years. It was awesome to share space with them.

    If you are a group practice owner or any practice owner, my goodness, if you’re any kind of practice owner beginner, intermediate, advanced, and you’d like some group coaching and support, check out The Testing Psychologist Mastermind Groups. I am enrolling for new cohorts, I think for, let’s see beginner practice and intermediate practice. I think our advanced cohort for January is full. I would love to talk with you. You can get more information at thetestingpsychologist.com/consulting and set up a pre-group call to see if it would be a good fit.

    Okay, [01:17:00] y’all. I hope the holiday season continues to be a good one for you. I’ll catch you next time.

    The information contained in this podcast and on The Testing Psychologist websites is intended for informational and educational purposes only. Nothing in this podcast or on the website is intended to be a substitute for professional, psychological, psychiatric, or medical advice, diagnosis, or treatment.

    Please note that no doctor-patient relationship is formed here. And similarly, no supervisory or consultative relationship is formed between the host or guests of this podcast and listeners of this podcast. If [01:18:00] you need the qualified advice of any mental health practitioner or medical provider, please seek one in your area. Similarly, if you need supervision on clinical matters, please find a supervisor with expertise that fits your needs.

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  • 262. Beyond ODD and Conduct Disorder w/ Dr. Akeem Marsh & Dr. Lara Cox

    262. Beyond ODD and Conduct Disorder w/ Dr. Akeem Marsh & Dr. Lara Cox

    Would you rather read the transcript? Click here.

    If you’re someone who questions the utility of oppositional defiant disorder, conduct disorder, and other disruptive behavior diagnoses – this episode is for you! Dr. Akeem Marsh and Dr. Lara Cox are here talking about the material in their recent book, Not Just Bad Kids. As you can tell from the title, they present a more nuanced perspective on kids’ functioning than simply labeling problematic behaviors. Here are just a few things that we discuss today:

    • The relationship between trauma, attachment, and disruptive behavior
    • Making connections with highly traumatized kids
    • Thinking outside the box to gather clinical info without asking about specific symptoms
    • Intervention strategies for these kids

    Cool Things Mentioned

    Featured Resource

    I am honored to partner with PAR for 2021 to bring you featured items from their catalog! Listen to each episode for specific product recommendations and links. Learn more at www.parinc.com.

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    I’ve partnered with At Health to offer CE credits for podcast episodes! Visit this link to access current and past episodes available for CE credit. You can use code “TTP10” for a discount on ALL the course credits you purchase from At Health!

    About Dr. Laura Cox

    Dr. Lara Cox, MD is a child & adolescent psychiatry specialist in Brooklyn, NY. Dr. Cox completed a residency at NYU Langone Medical Center. She currently practices at Nyc Psychiatrist Services P.c. Dr. Cox is board certified in Child & Adolescent Psychiatry.

    About Dr. Akeem Marsh

    Akeem Marsh, MD has dedicated his career to working with children and families of medically neglected communities. He currently serves as the Assistant Medical Director of The New York Foundling’s Home of Integrated Behavioral Health and as a member of the Verywell Mind Review Board. Dr. Marsh is a Fellow of the American Psychiatric Association and a distinguished fellow of the American Academy of Child and Adolescent Psychiatry (AACAP). He maintains an academic appointment as Clinical Assistant Professor of Child and Adolescent Psychiatry at the New York University Grossman School of Medicine, has presented nationally and internationally and is also the co-editor of forthcoming book “Not Just Bad Kids: The Adversity and Disruptive Behavior Link”.

    Get in Touch

    https://linktr.ee/AMarshMD

    About Dr. Jeremy Sharp

    I’m a licensed psychologist and Clinical Director at the Colorado Center for Assessment & Counseling, a private practice that I founded in 2009 and have grown to over 20 clinicians. I earned my undergraduate degree in Experimental Psychology from the University of South Carolina before getting my Master’s and PhD in Counseling Psychology from Colorado State University. These days, I specialize in psychological and neuropsychological evaluation with kids and adolescents.

    As the host of the Testing Psychologist Podcast, I provide private practice consulting for psychologists and other mental health professionals who want to start or grow psychological testing services in their practices. I live in Fort Collins, Colorado with my wife (also a therapist) and two young kids.

    Ready to grow your testing services? Click below to schedule a complimentary 30-minute pre-consulting call!

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  • 261 Transcript

    [00:00:00] Hello, everyone. Welcome to The Testing Psychologist podcast, the podcast where we talk all about the business and practice of psychological and neuropsychological assessment. I’m your host, Dr. Jeremy Sharp, licensed psychologist, group practice owner, and private practice coach.

    This episode is brought to you by PAR. PAR has recently released the Feifer Assessment of Childhood Trauma or the FACT, the first and only comprehensive instrument measuring how stress and trauma can impact children in a school-based setting. You can learn more or purchase the FACT Teacher Form by visiting parinc.com\fact_teacher.

    Hey y’all, welcome back to the final episode in the Holiday Hopes series. If you haven’t caught the previous six Holiday Hopes, episodes, definitely go back and check those out. You don’t have to listen to the whole series by any means, but the intent behind this series which is [00:01:00] wrapping up today, was to give you short little bites of information, small pieces, small elements of your practice that you can change for the new year with the hope that if you change 1 or 2 or 3, or gosh, even 6 or 7 of them, you would have a pretty different and hopefully more enjoyable practice by the new year. All in good time though. Don’t bite off more than you can chew. You can take this one by one at the pace that you see fit.

    So today is the last episode. Today, I’m going to be talking about celebrations and incorporating celebrations into your work life. This is something that often gets ignored, something that can completely fall by the wayside. And just a small example of that actually happens pretty much every holiday season for [00:02:00] me, where I don’t block off the amount of time that I want to take off over the holidays and I’ll often end up with a few things scheduled when I really don’t want things to be scheduled.

    So, it’s not celebrating per se, but it is all in the vein of putting work first rather than downtime and rejuvenation and so forth. So if that happened to any of you this year, know that you’re not alone and maybe this podcast is for you.

    So by the time, let’s see, when this comes out, I think there will be one spot left in both my beginner practice group and my advanced practice group. Those are both starting Mid-January or early February. So if you are in that beginner phase or the advanced phase, the two ends of the spectrum, there is a group for [00:03:00] you: group accountability, coaching, other psychologists who specialize in testing and want to level up their practices. If that sounds like the place for you, then check it out at thetestingpsychologist.com/consulting and book a pre-group call to figure out if it is indeed the right fit right now. And if not, I’ll help you figure out what might be.

    Okay. Let’s get to the conversation about incorporating more celebrations in your life.

    All right. Again, today we are just talking about how to celebrate a little bit more. I am a firm believer in celebrating for many reasons. When I was growing up, I loved [00:04:00] birthdays. I continue to love birthdays and other means of celebrating. I love celebrating other people and their accomplishments. I love celebrating my own accomplishments, but it can be really hard to do that for many of us.

    There are some reasons that go into that, of course, but I think one of them is that a lot of us are pretty goal-directed. In fact, most of our academic careers have been certainly goal-directed. I mean, there’s middle school, there’s high school, there’s getting into college, there’s graduating college, there’s maybe finishing an undergrad thesis, there’s getting into grad school, there’s finishing another thesis, there’s finishing a dissertation, there is a doing your internship, there’s graduating, there’s taking the licensing exam.

    There are many [00:05:00] goal lines so to speak along the way that we could celebrate, but the problem is that for many of us, we have about 30 years maybe more of continually striving for a goal-line only to see that goal-line get pushed back again. For those of us who’ve gone through doctoral education, there are many, many goal lines and there’s always something out there to do beyond whatever goal you just reached. So, psychologically, it can feel hard to stop and actually celebrate the smaller or even larger milestones along the way. And so, we get into this pattern of just pushing and never stepping back and celebrating because of that belief that there is always more. We haven’t quite reached where we want to go.

    So, one theme here is shifting your mindset [00:06:00] just a little bit into saying that you don’t have to wait until a huge milestone to celebrate. You can make little small celebrations along the way, as well as making time for the big celebrations. That story has certainly been true for me across the course of my life and with the practice and consulting and so forth. If that resonates with you again, you are not alone.

    Let’s talk about how to do more celebrating in your life. How do we do this?

    The short story is that you simply make time to do it. The second half of that, the longer story is that you give yourself permission to do it. I think the permission is the hardest part.

    I know for me, if I stopped to celebrate, there’s this voice inside that [00:07:00] says don’t back off, don’t take your foot off the gas pedal because there’s still much more to go. You could still do more. There’s still more to accomplish. And somehow, I have conflated this idea of stopping to celebrate as if it would… It’s like making a concession myself that I’m going to stop working as hard or that I’ve told myself that I have done enough. It’s okay that I’m going to just rest forever and never get back to being more ambitious. And the truth of that is that it’s simply not true, at least for me.

    So, a big part of this is just giving yourself permission to celebrate and know that it does not take anything away from your accomplishments and that celebrating doesn’t mean that you have lost your ambition or that you’re [00:08:00] conceding reaching your goals or that you’re going to back off and lose your edge or anything like that.

    So, the first component is maybe just, like I said, to give yourself permission to celebrate from an emotional standpoint. Once you have that in place, then the practical piece falls into place a little easier. So the practical things really just get to the scheduling and figuring out what you would like to celebrate. I like to do small celebrations on a weekly or even daily basis sometimes.

    Maybe you’re saying, well, what am I going to celebrate? I’m just working each day. Well, you can celebrate finishing a report. You can celebrate finishing a section of a report. You can celebrate [00:09:00] making it through the week and accomplishing whatever goals you set for yourself at the beginning of the week. If you’re not setting goals for yourself at the beginning of the week, I recommend that you jump into that. I have an episode on journaling for productivity that addresses some of those ideas. So if you’re not doing that, then definitely consider starting.

    Giving yourself some milestones along the way to celebrate is as important. Often that means writing things down and making sure that you know what you’re working toward, but celebrations can happen any time. You can celebrate the fact that it’s sunny outside or that you got an extra referral or you were booked for a speaking gig or whatever it might be. [00:10:00] It could be anything.

    I like weekly celebrations. I like monthly celebrations. And then I like the idea of having larger goals that are also paired with time to celebrate. So, for many of us in private practice, that might be an income goal. It might be a savings goal. It might be a certain number of clinicians that we’ve hired. It might be a profit margin. It can be any number of things that you want to celebrate. It might be a certain number of families helped during the year.

    I just want to get your wheels turning about some of these bigger celebrations that you might be able to engage in and you can schedule them. I like to schedule them regularly. So, you can weave celebration into an annual retreat, for example, or a quarterly [00:11:00] retreat. It’s really a nice way to cap off a think week if you have gotten into that habit. So, just start to wrap your mind around the idea of celebrating a little bit more.

    You might even start by just making a simple little list of daily, weekly, and annual accomplishments that you would like to be able to celebrate. Once you have those, then those give you north stars to work toward so that you know when you’re allowed to celebrate.

    Let’s take a quick break to hear from our featured partner.

    Kids are experiencing trauma like never before. How can you figure out whether they’ve been affected and how it impacts their behavior and performance at school?

    The Feifer Assessment of Childhood Trauma or the FACT is the first and only comprehensive instrument measuring how stress and trauma can impact children in a school-based setting. The FACT teacher form solicits the teacher’s perspective on the performance and behavior of children ages 4 to 18 years. It takes just 15 seconds to administer. The available e-manual gives you detailed administration and scoring instructions. You can learn more or purchase the FACT teacher form by visiting parinc.com\fact_teacher.

    All right, let’s get back to the podcast.

    Celebrations look differently for different people. This might be buying yourself that really expensive bottle of wine or champagne or Bourbon or whatever it might be. It could be taking yourself on a trip. It could be booking a massage. It could be buying yourself a little treat. It could be buying yourself a big [00:13:00] treat. It’s any number of things. It could be taking your family on vacation.

    So, that’s the exercise here. If you just sit down with a piece of paper or a document and create one column of events to celebrate or milestones to celebrate this year and another column that you can use to pair those events with specific means of celebrating, then the final component is to actually get onto your calendar and block off the time to do those things if time is indeed a factor in keeping you accountable to celebrate.

    That’s it. That’s pretty straightforward, but this is an idea that has been, Gosh, it has been running around in my mind for a while, and it’s been a challenge over the years. Like I said, if you are used to striving, [00:14:00] it is hard to dial it back and rest and give yourself time to actually celebrate some of these successes.

    And if you can’t think of anything, ask those close to you. Ask your partner. Ask your friends. Ask your family. They might be able to help you with ways to celebrate and things that you can celebrate because we’re not always experts on ourselves. 

    I hope that was helpful. I will be engaged in a nice reflective exercise here as we start the new year looking at, of course, my schedule and the things that are happening in my life. I hope that some of y’all are doing the same. And again, this is a nice exercise to wrap into that process as you think ahead and look toward what this year might look like for you.

    Like I [00:15:00] mentioned at the beginning of the episode, if you are a beginner practice owner or advanced practice owner, and you would like some group coaching and accountability to toss ideas around, have some homework, set some goals to get your practice to the next stage, I’d love to help you out with that. You can book a pre-group call at thetestingpsychologist.com/consulting, and we’ll see if it’s a good fit.

    All right, y’all, thanks for listening to the Holiday Hopes series. I hope that it has been helpful. You can go back and check out the other episodes if you’d like. If you take one or two of these ideas and put them into place, the hope is that they will make a noticeable difference in your practice.

    So as always, stay in touch. Let me know what you’re working on, what you’re thinking about, what you think of the podcast. And [00:16:00] I will talk to you next time as always.

    The information contained in this podcast and on The Testing Psychologist website is intended for informational and educational purposes only. Nothing in this podcast or on the website is intended to be a substitute for professional, psychological, psychiatric, or medical advice, diagnosis, or treatment.

    Please note that no doctor-patient relationship is formed here, and similarly, no supervisory or consultative relationship is formed between the host or guests of this podcast and listeners of this podcast. If you need the qualified advice of any mental health practitioner or medical provider, please seek one in your area. Similarly, if you need supervision on clinical matters, please find a supervisor with expertise that fits your needs.

    Click here to listen instead!

  • 261. Holiday Hopes #7: Celebrations

    261. Holiday Hopes #7: Celebrations

    Would you rather read the transcript? Click here.

    Welcome to the Holiday Hopes series! Holiday Hopes is a seven-part series to carry you through the next several weeks. Each episode will focus on one aspect of your practice that you might aspire to change in the new year. By the end of the series, you could potentially make significant changes in nearly all areas of your practice!

    This seventh episode in the series is all about celebrating your successes. What better time to reflect on what’s going well than the new year? Here are a few ideas that I’ll discuss today:

    • Setting aside time to celebrate yourself
    • Balancing contentedness with ambition
    • How to celebrate (body scan exercise)

    Cool Things Mentioned

    Featured Resource

    I am honored to partner with PAR for 2021 to bring you featured items from their catalog! Listen to each episode for specific product recommendations and links. Learn more at www.parinc.com.

    The Testing Psychologist podcast is approved for CEU’s!

    I’ve partnered with At Health to offer CE credits for podcast episodes! Visit this link to access current and past episodes available for CE credit. You can use code “TTP10” for a discount on ALL the course credits you purchase from At Health!

    About Dr. Jeremy Sharp

    I’m a licensed psychologist and Clinical Director at the Colorado Center for Assessment & Counseling, a private practice that I founded in 2009 and have grown to over 20 clinicians. I earned my undergraduate degree in Experimental Psychology from the University of South Carolina before getting my Master’s and PhD in Counseling Psychology from Colorado State University. These days, I specialize in psychological and neuropsychological evaluation with kids and adolescents.

    As the host of the Testing Psychologist Podcast, I provide private practice consulting for psychologists and other mental health professionals who want to start or grow psychological testing services in their practices. I live in Fort Collins, Colorado with my wife (also a therapist) and two young kids.

    Ready to grow your testing services? Click below to schedule a complimentary 30-minute pre-consulting call!

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  • 260 Transcript

    Dr. Sharp: [00:00:00] Hello, everyone. Welcome to The Testing Psychologist podcast, the podcast where we talk all about the business and practice of psychological and neuropsychological assessment. I’m your host, Dr. Jeremy Sharp, licensed psychologist, group practice owner, and private practice coach.

    This episode is brought to you by PAR. PAR has recently released the Feifer Assessment of Childhood Trauma, or the FACT, the first and only comprehensive instrument measuring how stress and trauma can impact children in a school-based setting. You can learn more or purchase the FACT teacher form by visiting parinc.com\fact_teacher.

    Hey everyone. Welcome back. I am here with you for part two of the assessment for visually impaired kids. If you didn’t catch part one, you have to go back and listen to part one. It was just information-packed and it lays a lot of groundwork for the material that we cover today. [00:01:00] If you don’t listen to part one, I don’t know that you’d be completely lost but it will definitely help provide some context.

    So I am not going to do full introductions of each of my five guests this week but you can check those out in the show notes or go back to part one and catch those full biographies. These fantastic women just have an incredible wealth of knowledge and life experience. I am so grateful to have them again for another hour or so.

    I don’t want to delay any further. Let’s get to my conversation with May Nguyen, Stephanie Herlich, Dr. Terese Pawletko, Dr. Marnee Loftin, and Dr. Carol Evans.

    [00:02:00] All right y’all. Hey, welcome back to part two of our series on assessment with visually impaired kids. If you did not catch part one, definitely go back and check that out because we are building upon that information that we talked about in the first episode. Let’s do a quick introduction again, just to orient the audience to each of your voices. May, you want to go first?

    May: All right, thanks. My name is May Nguyen. I’m a licensed educational psychologist at the California School for the Blind on the assessment team. I work with Stephanie Herlich who’s here with me today. I’m glad she joined me.

    Dr. Sharp: Great, yes. Stephanie.

    Stephanie: Hi everybody. I’m Stephanie Herlich. I’m a teacher of the visually impaired and orientation and mobility specialists and the Assessment Center Coordinator of the California [00:03:00] School for the Blind assessment team.

    Dr. Sharp: Very nice. I actually meant to ask you this last time, Stephanie. How does a mobility coordinator differ from an occupational therapist, for example?

    Stephanie: That’s a really good question. An orientation and mobility specialist is its own credential. It’s specifically teaching students who are blind and visually impaired orientation skills. So everything from body movement, body awareness, concept awareness, to travel skills which is more than the mobility part- so using a white cane, street crossing, safety skills, all of that. So specifically for students with visual impairments.

    Dr. Sharp: Fantastic.

    Stephanie: And our students will likely also have an OT quite possibly.

    Dr. Sharp: Sure. Great. Thanks for indulging that, I should have asked in the previous episode. [00:04:00] Let’s see. We’ll go in the same order as last time. Carol.

    Dr. Carol: Hey, I’m Carol Evans and I taught visually impaired students for a number of years. And when other teachers of the visually impaired in our state we’re expressing disappointment with the evaluations being done by school psychologists who really had no background in vision, I said, well, what needs to happen is somebody who understands visual impairment needs to become a school psychologist. And everybody looked at me and that’s what I did. So about equal parts of my career in teaching visually impaired and school psychology.

    Dr. Sharp: There you go. It’s a nice combination. Let’s see. Terese.

    Dr. Terese: Hi, I’m Dr. Terese Pawletko and I, like Carol, I’m a former teacher of the visually impaired. I did that for five years before going onto graduate school. I [00:05:00] have a background in school psychology and pediatrics psychology, and I am working in private practice in New England and beyond

    Dr. Sharp: Fantastic. Thanks. Marnee, bring us on.

    Marnee: Okay. I’m Marnee Loftin. I’m one of the psychologists who came to The Texas School for the Blind and knew nothing about vision. My background was not even in school psychology. It was in clinical. So I’ve had quite a learning curve thanks to some very tolerant teachers for the visually impaired. I retired from the Texas School about eight years ago, and I still do a little bit of consultant work. Largely, what I’m doing is work plots trying to help psychologists have some idea of what they need to learn to perform the best possible evaluations on these kids.

    Dr. Sharp: Great. We have such an amazing team here to be talking through these concerns. So, thank you all for being here again. [00:06:00] I’m excited for part two. So we’re really going to dive into specific overlap or comorbidities with other mental health concerns or learning concerns and visual impairment. So I’m excited about that.

    Carol, I think you’re going to start us off, maybe fill in a little information that we missed last time, and then transition us to ways to interpret our data.

    Dr. Carol: Okay. Thank you so much. Children who are blind or who have very low vision have a greater challenge in acquiring language than children who are sighted. Children want to learn the names of things. I can remember my six-month-old baby, when I’d carry her around the apartment, she would look at things and then look at me and look at something and [00:07:00] look at me. And I felt like she was asking me what it was. So I told her. I would say that’s a door, this is a bookshelf, this is a map.

    My husband had a carved wooden bear from Hokkaido, Japan. And I said that’s the bear. We haven’t had that on the shelves in a long time. Anyway, the next day when I would say, where is the…? She would look at that thing. She hadn’t learned a point yet but she would look at that thing and she had it down. So that’s when I realized, you have to tell kids when you’re getting them dressed, we’re putting shoes on the right foot and those kinds of things so that they understand that things have names, that miracle moment in Miracle Worker where Helen Keller [00:08:00] finally gets the idea that things have names.

    Dr. Sharp: Yeah. I appreciate you bringing that backup. It makes intuitive sense that we develop language from sight but it’s nice that we got to reinforce that kids with visual impairments, that’s just another factor that might contribute to difficulty in learning the language.

    Dr. Carol: And it all has to be brought to their body. They have to touch things. A miniature car may not represent a real car to a child who has the idea of a car is a sense of motion and getting to grandma’s house. Unless they’ve explored the car inside out, you don’t know if you’re using a miniature to represent a real thing, because miniatures don’t necessarily represent real things the way pictures do for sighted children. So they need all [00:09:00] that experience.

    Dr. Sharp: Right. So I imagine it’s just extra important for caregivers or interventionists or whomever to go that extra mile to make things concrete, make things tactical, describe what’s happening, narrate life. Is that fair?

    Dr. Carol: Yes, it is.

    Dr. Sharp: I appreciate you circling back and making sure to reinforce that information. We talked a bit about learning and development last time. So that’s a crucial piece of information.

    So maybe we do a little bit of a left turn into interpreting some of our assessment data. I think that’s where we’re going today primarily. So feel free to take that and run with it.

    Dr. Carol: Okay. Well, we were also going to talk about caveats for a report. I think that probably should [00:10:00] come first.

    Dr. Sharp: Sure, let’s do it.

    Dr. Carol: Something that I have used in reports is to say this, precise determination of cognitive or academic ability levels of individuals with visual impairments is particularly challenging. It is necessary to interpret the findings in this report with caution for two reasons: the instruments used were standardized on a sighted population and certain adaptive procedures were required in administration to allow for access to the materials and examples of those, and they ought to be in the report, enlargement or magnification, braille, tactual representations or scoring without bonus points for rapid completion.

    I think the term for processing [00:11:00] speed ought to be changed to visual-motor speed because a lot of people interpret that as the speed of thinking, and that has nothing to do with what you’re doing. I’ve had people interpret slow reading fluency as a result of slow processing speed. That doesn’t apply to a student with a severe vision impairment.

    Dr. Sharp: Sure. I was racking my brain thinking about measures that we use, measures of processing speed that don’t have a visual component. I know they’re out there, but they’re certainly not commonplace by any means.

    Dr. Carol: That would be a good thing to find out.

    Dr. Sharp: Yeah. While we’re on that topic, are there any that come to mind that you know of? Anyone could jump in of course, but any measures that don’t rely on visual input?

    [00:12:00] May: Instead of doing a paper-pencil type of task, you could tap into some measures of lenses with ideations fluency like with long-term retrieval. With the NEPSY-II, there’s word generation. With the WJ IV in the Phonological Processing subtests, there is a component of another word generation type of task. The D-KEFS- there’s a verbal fluency task.

    So there are ways to pull to. And there’s no clean measure of where you’re just tapping into one thing, you’re always going to have a little mix of different processing areas, but I feel that might be the way to go when you’re looking at a fluency type of measure for a student with visual impairment that’s more oral or auditory, at least.

    Marnee: There is a neuropsychologist in [00:13:00] Austin who has worked in the field of visual impairment for a number of years, Dr. Jack G. Dial. He has developed the cognitive tests for the blind which is used pretty extensively in the rehab program that has got some nice measures of processing skills. The only problem is, it starts with children the age of 15. So very few of us would be, we just wouldn’t be testing kits for the first time. And it’s a very expensive test too, but just to throw it out there. That is something that he has used. And they’ve developed some pretty nice norms on it.

    Dr. Sharp: That’s great. I’ll put that in the show notes. I’m going to do a little more research on that myself. Thanks.

    Carol, I wonder, are there other qualitative factors that we need to take into account, [00:14:00] just big picture to interpret the data from an assessment we need to be aware of?

    Dr. Carol: Of course. I think we all agree that a full-scale IQ is inappropriate.

    Dr. Sharp: Yeah. Lots of nods.

    Dr.Carol: I tested one student who had retinitis pigmentosa 1 in my career whose performance or visual-spatial, whatever we were calling it then, was higher than his verbal. And that’s an anomaly. That’s not something you see every day. So I’ll give you some examples of qualitative interpretation. I think sometimes it used to be that picture completion was the first test you gave, right?

    Dr. Sharp: Right.

    Dr. Carol: It’s not even part of the core anymore, but I think it would be useful as a screening device to determine whether you need to even continue [00:15:00] to attempt to administer things with visual stimuli.

    For example, Arthur persisted in calling the sample item on the WISC-V picture completion a banana. It’s really a pencil because of the color. He was unable to identify correctly any other pictures on this or any of the other subtests. He was unable to identify objects in my office by sight but was able to identify all of them by touch. This finding suggests a profound limitation in functional vision and supports the functional vision and learning media assessments, which stated that touches is primary learning channel. It also seems to explain why Arthur is currently having great difficulty in learning to read print.

    Dr. Sharp: I like that. I love these concrete examples

    Dr. Carol: Here’s another one. Carlos correctly completed some of the [00:16:00] more difficult items on the WISC-V block design subtests but required about 50% more time than the standard for sighted children his age. These results suggest that he can do visual construction tasks accurately when given adequate time to complete the work.

    Dr. Sharp: Sure.

    Dr. Carol: Here’s another one. Although Laura’s performance on the WISC-V symbol search and coding subtests was accurate, she worked slowly and very carefully on these subtests of processing speed. Laura has nystagmus- rapid involuntary movement of the eyes, and photophobia-extreme response to light associated with albinism. And these typically cause her to need more time for detailed visual work.

    Dr. Sharp: That’s great.

    Dr. Carol: Do you want any more or should we…?

    Dr. Sharp: I think these are good. It’s funny. We were talking about the [00:17:00] episode transcriptions before we started to record. This is a great reason to have transcriptions in the episodes. If folks are listening and want to get these statements verbatim, adapt them and use them, the transcript is a great place to do that.

    Dr.Carol: I have one more that I think is important.

    Dr. Sharp: Sure.

    Dr. Carol: Despite his severe visual loss, Leon completed all of the WISC-V block design items within the time limits. To accommodate for his need to scan to see all the blocks in the pictures, these were scored without bonus points awarded for rapid completion. Leon stated that he loves puzzles and works on them for relaxation. The great thing about this kid is that he had about a 25% visual field in one eye. He should have been right-handed, but because he could only see that, he became left-handed and he reversed some letters, but he got the highest score possible on those.

    Dr. Sharp: That’s incredible.Yeah. As we just start talking about how to interpret data, it makes me think of two episodes that I’ve done in the past just on the basic non-standard administration. It seems like that’s just the theme here is, how do we think outside the box and from the very get-go not really get roped into those strict guard rails for administering and interpreting this data. I like this conversation and where it’s going. So, be flexible.

    Should we [00:19:00] transition to the learning disorder realm or Carol, is there anything more to say just in terms of general qualitative ways that we should be looking at this data?

    Dr. Carol: Well, I think there’s another one here that might be useful. And of course, people are welcome to get the rest of them by watching the presentation that Terese and I did last May for the American Printing House. They could get the rest of them. Here’s one that I think would be important.

    Olivia was unable to respond accurately to items on the WISC-V picture concept subtests when wearing her glasses. She was able to see the details of the pictures when items were presented on the video magnifier. She also stated that she finds it easier to read fluently when using the machine.

    Dr. Sharp: Yes, thanks. I think [00:20:00] people love these concrete examples. I’m glad that you brought those and shared those with us. The webinars that you mentioned will be linked in the show notes too. So folks can go check that out if they would like. So, let’s see. Should we transition to the learning disorder realm and talk about more specific methods?

    Marnee: I was feeling a little self-conscious about doing something on learning disabilities or disorders. I’m not a teacher, as I said, I had no training in VI, so it’s all been on-the-job training and a lot of reading to get the knowledge that I’ll be sharing today. I think one of the first things I’d like to talk about is the whole issue of under-identification with learning disabilities and children who are visually impaired. If you look at the statistics nationally, [00:21:00] about 14% of children in special education are served…

    Let me back up. Nationally, about 18% of children (between 14% and 18%) are served in special education programs in public schools. 80% of those kids are served because of a reading disability. So, it’s a high incidence issue with children who have vision, and it’s almost never identified, any toppers of special learning need with children who are visually impaired.

    The estimates that we do as the group indicate that we would expect about 14% to 45% of kids to have some type of an additional learning disability and visual impairment. [00:22:00] They’re at high risk because of the frequent neurological involvement. And yet it is very infrequently determined.

    I don’t have records nationally, but in the state of Texas, we’ve got a pretty high number of children who are visually impaired. It sits right around 9,000 that we serve throughout the state. And I think the numbers that I’ve found that I’m hoping that they’re wrong, that only about 200 of those children are identified as having a specific learning disability and a large percentage of those children were from the Texas School for the Blind. Kids that are really struggling tend to be referred there, and we certainly are more comfortable in identifying those kids.

    Most typically, I think people see the visual impairment as the sole issue- the reason that they can’t read, and there’s almost always an overwhelming [00:23:00] urge to push them toward learning braille. You would do better if you learn braille. You’d be able to read better if you learn braille. And as those of us that work know, that’s just not the case. For example, readers in print become struggling readers in braille. There’s no magic cure.

    Carol and I have done this dyslexia project for the National Center of Literacy, which number one was a lot worse than we thought it was going to be. And number two, it was good because it really helped us do some digging and get some more recent research into our brains. I was fascinated because there’s now a lot of interventions about brain energy studies. They have gone in, and they have looked at brain images of children who had vision and are reading as compared to children with no vision or braille readers. And sometimes [00:24:00] they’ve never had vision.

    And what they find is that the same areas of the brain, whether in those children with or without vision, even for those kids who have never had any vision. So what that tells us is that it’s probably a neurological basis to the learning disabilities and that it’s separate and not at all related necessarily to the visual impairment.

    I have often wondered what the reasons are that people are so very hesitant about identifying a specific learning disability with kids who are visually impaired. I would agree that I think it’s almost impossible to identify it with kids in the area of math- any of those math areas because they’re pretty infrequently related to visual-spatial concepts, which are always going to be difficult. It’s also, I think very difficultly with [00:25:00] writing because there are some aspects of vision that just[…] the ability to read punctuation signs, handwriting, speed of handwriting, et cetera. But in general, the reading we would expect if they have the appropriate intervention is that they’re going to be reading on grade level just like any other child.

    What we know, and I may be giving out a little bit more background, but I think if nothing else, it gives you the confidence to do these evaluations. We used to think that kids had a little bit different way of learning phonics if they were visually impaired. We have found that that’s not the case. They learn phonics essentially the same way at the same speed as sighted children.

    We used to believe that the initial word recognition was different, and that’s really [00:26:00] not the case either. They will learn some words in a different order. So the scope and sequence of reading are not the same with children who are visually impaired, but they’re going to end up… at the end of 2nd grade, they should be reading just about like the other children. If they’re not, there’s something else going on. [00:26:22] [crosstalk]

    Dr. Sharp: Marnee, Can I ask you a question?

    Marnee: … when children get to be about in the 3rd or 4th grade. And so what we see is that children who are visually impaired become much less fluent in their reading than a child with normal vision. The child with a visual impairment has to do all sorts of other things in addition to reading.

    So one of the few things I can say with some degree of confidence and hope other people nod their head is that they’re always wanting to be slower readers. There’s just no way that they’re going to be able to read as rapidly. [00:27:00] So you end up with kids that are supplementing the material with audio. They are having their assignments with speech, but all things considered, kids up until about the age of 3rd grade should be reading just like their peers. If they’re not, there’s something else going on.

    Again, when I stop and try to think about what are the reasons that people are so hesitant, I think one of them is what we just talked about- the fact that we really don’t know how children should learn how to read if they’re visually impaired unless you happen to work in this team and field.

    But the primary reason is something we can all preach about forever. People somehow read the IDEA criteria, they read their state criteria, and they say that in order to determine this child has a learning disability, you have to rule out vision as the cause. [00:28:00] They create their own definition and they hang tight to it. And in fact, what it says, as we all know is that you have to determine that it’s not the primary cause of the difficulties in reading.

    So what I have suggested and I have done a lot of workshops on is, how do you determine that it’s not the primary cause? What kind of data do you have to gather before you go in and evaluate? How do you process in your own mind? How do you use the test and determine it?

    We probably have talked about this more than any of y’all care to hear, but one of the things that you need to know is that there’s not a real easy way that you’re going to do a learning disorder evaluation for a child who is visually impaired. It takes a lot more time. There are no neat little formulas where you plug it into your [00:29:00] computer. You’re going to have to do some real leg work to do a quality evaluation.

    The first thing that I do when I start looking at these evaluations is that I ask the teacher to sit down and be very specific as to what the concerns are. Oftentimes, the real concern is that they’re not doing their homework and they’re concerned about the slow rate of learning. So, I’ve really tried to sit down and talk with them about what is going on.

    The next thing I do is to sit in the classroom, sit in different environments and observe what’s going on with the child. There are some wonderful checklists out there to try to give you some structure to do the observations. I try to look at things like organizational skills, attention, acting out behaviors, all of those things [00:30:00] that you would look at with other children who have vision, but it’s important to really spend an increased amount of time in the classroom with these children.

    One of the things that I really tried to look at is how are the organizational skills of these children who have been referred for these types of evaluations? A lot of times what I see is children who are very disorganized. If they do their homework, they can’t find their homework to turn it in. They can’t find all of the adaptive devices that they have. So I look at that first.

    The next thing I look at is avoidant behavior. To me, one of the real behavioral criteria for looking at learning disabilities are these children that are so cooperative but will avoid doing a reading test. They’ll do just about [00:31:00] anything to avoid reading aloud, reading orally with any other person. I think those are things that I looked at. I always get work samples in the classroom so that I can sit down and look at what their work looks like over a period of time, rather than in that brief time that I’m sitting down and evaluating them.

    The next thing is a number of interviews after I’ve started gathering the data. I use a lot of checklists to ask the teachers to complete as well as parents to see where some of the problems might lie. One of the things that I like a lot is the BRIEF-2. And somebody can help me with that is. So Writing Inventory of Executive Functioning. It has a version for the parent, for the teacher, and for the student.

    Again, that tells me a lot [00:32:00] about what is at the core of some of these problems. I will almost always run a behavioral inventory. The BASC-3 is one that I use extensively. It’s one that doesn’t have a lot of bias towards students who are visually impaired. So that’s one that I will use when I’m doing an IV evaluation or one of the LD evaluations.

    After I’ve done all of this, then I start reviewing the records to ascertain that these kids are kids that have had a sure and clear intervention. The VI teacher has been there. The VI teacher has not been out on leave themselves. And most importantly, this is a child who’s been healthy enough to learn. You’ll see a lot of kids in our caseloads that have really serious medical problems that have been in and out of school. [00:33:00] So being certain that they have, in fact, had access to their education.

    Then I start doing the evaluation. We are lucky because one of the better tests for doing educational evaluations is the Woodcock Test of Achievement. The fifth version is now available through the American Printing House. And I think we touched upon that briefly the other day, and it’s probably as good an instrument as you will find to do an educational evaluation.

    If you’re not a teacher of the visually impaired, I would discourage you from sitting down and doing the braille version. I know enough braille to get myself into trouble. I could administer it with some degree of skill, but I have troubles interpreting. So if I have ended up in a situation where I’m doing part of it by myself, I always record it so I can go [00:34:00] back and listen again to see exactly what the error sounds like.

    I, again, will take work samples of the particular area that we’re looking at. I do a lot of informal inventories that may be available through APA or sometimes things that I learned. Those will very considerably based upon the age of the students. If you are testing a younger child, I think the Boehm Test of Basic Concepts is a great instrument to see where they really are.

    I do different tests of phonemic awareness that you administer orally. So there’s no bias. You can do parts of the Woodcock to see how children are decoding the phonemic sounds themselves. When I get [00:35:00] into testing an older child, I’m very interested in determining how they use audio materials. So I will do some reading. I will have them listen to texts that I have taped, and I will try to vary between scientific, historical, just playing literature, ask them questions that are inferential as well as just factual based. And it’s again, very informal, but it typically gives me good information.

    Based upon all of that, I sit down and really do a clinical analysis. There’s not a whole lot of statistical things that you can do with these children. But I think we’ve got a great deal of data that we can use to make a determination of what is going on. That’s maybe more than you ever wanted, but that’s what I got.

    Dr. Sharp: No, that’s great. It makes me think of the [00:36:00] innocent until proven guilty paradigm. You really do have a lot of sort of like burden of proof to show that any learning issues aren’t due to visual impairment, and so much work goes into that process before you even move to do the testing itself.

    Marnee: Well, and one of the things that have always fascinated me and the data from Texas really shows this to be true, people are pretty quick to slap a label of ID on a child whose scores are in that borderline range. They are extremely eager to determine that the child has autism in a certain form. That is the thing that we used to see most commonly in young children who were coming in. And I’m sure Terese will talk about all of the problems with that. But for some reason, specific learning disability, all we always want to do is change the [00:37:00] media and that’ll work fine. And Stephanie can tell us it does not work fine.

    Dr. Sharp: Do you want to tell us about that, Stephanie? Is it okay, is it not?

    Stephanie: I so agree. I see it so often. Oh, this child can’t read, teach them braille. And the same problem they’re going to have reading print, they’re going to have the same issue reading braille. It’s not going to solve everything. And we see this over and over again.

    Dr. Sharp: Right. I think that’s important to highlight. Carol, I know you want to jump in. Just hammer that out is that these reading problems are going to be there whatever the medium is, right? It’s kind of what we know about dyslexia and reading issues in general, is it’s there.

    Stephanie: Yeah, I can even tell you, we have two cases right now of students whose, and I’ve seen it before where [00:38:00] families are insisting that a child learned braille and these are students I wouldn’t even consider teaching braille to. They’re visual learners. They have enough vision. And we’ve also seen it in reports where optometrists or ophthalmologist recommends that the child learn braille. And that’s also really tough because they are not the ones that should be recommending that. It’s really a teacher of the visually impaired through learning media assessment that makes that determination along with all the other pieces to the puzzle.

    Dr. Sharp: I wonder if it is similar to gosh, like some of that phenomenon with like a TBI, how parents or caregivers can get really bought into the idea that this like a brain injury is leading to impairment that may or may not actually be there, and can cause things that it [00:39:00] maybe isn’t actually causing. I don’t know if y’all see any of that or maybe it just varies across the board. Parents that are super bought into visual impairment as a major limitation or not.

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    Marnee: Well, and I really do think that it was interesting because, with my own children, they were going to high school with two visually impaired children, one who used large print and one who used braille. And I was fascinated listening to all of the kids talk in our living room because they saw braille as being very romantic, kind of what you do if you’re visually impaired. Large print to them just looks strange or using a magnifier. So I think there are some societal pressures too the parents want to follow

    Dr. Sharp: Sure.

    Stephanie: I was just going to throw out there. I think sometimes the focus is on the visual impairment because it seems like that’s something that can be fixed. And whereas a learning disability, you can’t fix it. You can come up with strategies and you [00:41:00] can come up with interventions, but you’re not going to fix it. And I think that’s also where it goes.

    Dr. Sharp: That makes sense. Carol, I know you’ve been waiting here.

    Dr. Carol: Just a tiny bit. When I was teaching in one district, we had one student who never made academic progress until she learned braille. It was because qualitatively, her vision wasn’t good enough to distinguish between similar-looking letters. That was one case where that did matter.

    And then we’ve had sometimes a student who insisted on using print despite the fact that he couldn’t be efficient with it. He was a student with a traumatic brain injury, hit by a car while [00:42:00] riding his bicycle. And he was such a good braille reader that he could read through a bandaid. He had tactile sensitivity, but he didn’t have the processing speed to keep up with other children as they were taking turns reading. So I had to teach him to skim. Does that make sense? Is that relevant? If it’s not relevant you can…

    Dr. Sharp: Yeah, I think it is. All this is relevant and helpful. There’s just so much to consider. I’m just sitting here like a deer in the headlights trying to take all of this in and I’m guessing some listeners are as well. So is there anything else to say, well, I know there are tons that we could say about learning disorders, but anything else you want to add, Marnee before we [00:43:00] shift over to the autism realm?

    Marnee: No. I’m sorry. I probably took longer talking about it than I should have. It’s an interesting topic to me.

    Dr. Sharp: Not at all. No, it’s super interesting. And you really anticipated that question of mine which is, how do we even separate these things? And can we separate those things? I think you did a great job talking through that.

    Marnee: Thanks.

    Dr. Sharp: Of course. So maybe it’s time to shift over yet to the area of autism and other medical concerns.

    Dr. Terese: Yeah. It’s my field. And I’ll encourage Marnee to jump in with comments as needed. But I think one of the things I was really pretty surprised when the recent estimate for autism came out as 1 in 44, that came out within the last two weeks. And that’s in the general population.

    As Marnee had [00:44:00] mentioned just in relation to the learning disabilities, kids with vision impairments, the vision impairment was the dominant focus. So there was not a lot of emphasis or encouragement to look for autism and kids with vision impairments. In fact, repetitive behaviors were referred to as blindisms for many years. And so, that still exists as a term in some people’s minds and in some people’s experiences. So I think the audience needs to be aware of the fact that they may hear of those repetitive or stereotypic behaviors as blindisms. And I basically try to remind people those occur in many different populations, including cognitively impaired kids and other kids with sensory deficits.

    So the other thing that I hear, Jeremy is autistic-like when people don’t want to consider the big A in the population of kids with vision impairment. So they’ll refer to some of the echolalia or some of the other things as autistic-like, and [00:45:00] that also muddies the waters pretty significantly as diagnosticians. So just some cautions in terms of things.

    The other thing, and I think we talked about this a little bit the other day was, when kids are engaging in stereotypic behaviors or those repetitive behaviors, I want to make sure that people have been working with them on how to use their hands effectively, because otherwise, we may be seeing stereotypic behaviors because the children don’t know quite how to approach their environment in a functional way. So as a rule out to make sure that that’s taken into account.

    I think the other biggest consideration, and this is for the population of professionals working in the field of visual impairment is it’s really the cluster of behaviors that define autism spectrum disorders. Those sensory sensitivities, the communication deficits, the repetitive behaviors, and difficulties with change and that social [00:46:00] communication difficulty. And so, it’s that big cluster, a clump of behaviors that we need to be looking at, not just the stereotypic behaviors, not just the echolalia, which again, I think is what’s been confusing to people.

    There are at least 14 eye conditions that I’ve found literature on that have a subgroup of kids with autism spectrum disorders. I’ll just mention a few of them. Retinopathy of prematurity. So those extremely low birth weights premies are at risk for spectrum disorders as well as visual impairments. Leber’s congenital amaurosis, optic nerve hypoplasia, and amblyopia- which is the lack of eyes, congenital rubella syndrome, CHARGE syndrome, WAGR, Cornelia de Lange, Norries, albinism- which again, people may not think of, but a subgroup of kids with albinism are on the autism spectrum, and velocardiofacial syndrome to mention a few of those. All have been substantiated in the literature as having a subgroup of kids with autism spectrum disorders.

    And I found a study [00:47:00] that was done in 2016 by Kancherla et al. And it was using CDC data. And they found in the Atlanta population between 2000 and 2008, 7.2% of the visually impaired population of children under the age of 8 years had an autism spectrum diagnosis. So it’s not an insignificant number. And most of those with kids with low birth weight had intellectual disabilities and congenital malformations or syndrome. So just something to be aware of is that there are autism spectrum disorders and the population of kids with vision impairments.

    So what do we do about it? We really want to look at developmental history, so gathering significant information and teasing out. And there are some [00:48:00] suggestions in terms of things like lack of babbling and some of the repetitive behaviors and lack of curiosity, social curiosity, social interest as red flags.

    Family history is important because I had a young man who was an ex-preemie. He was born at 23 weeks gestation. And after I diagnosed him with Asperger’s, his uncle was diagnosed with Asperger’s and the uncle didn’t have any birth history complications. So genetic links are pretty important to tease out. Educational history in terms of the types of interventions that have been done with the kids, again, as I mentioned, in terms of hand function and use and social interaction supports and those kinds of things. We want to look at what kids have been given.

    Adaptive behavior measures are important to include. And as we’ve mentioned repeatedly, unfortunately, there are no adaptive behavior measures that are developed on [00:49:00] kids with visual impairments. There was the SIB-R which is the Scales of Independent Behavior, but that hasn’t been updated. And so, they had removed the visually loaded items on it, but it’s a pretty dated test.

    I use the autism spectrum rating scale, and what I suggest people do with anything that has reference to eye contact or making eye contact is that we substitute the orients body in the direction of the speaker, because that’s what we’re often telling folks with visual impairments to do is, to let your audience know that you’re listening, you really need to face them. And so eye contact is not going to be appropriate to use with a population of visually impaired, but orienting body in the direction of would be important.

    I also use parts of the ADOS. You can’t score the ADOS. It’s not been developed on kids with visual impairments, but I’ve found some of the play materials to be useful. I had [00:50:00] one little boy who was an ex-preemie and he could not get past some of the stimuli that were involved in that pretend play. So for those of you that have done the ADOS, there are two sets of balls. One is a set of globe-like balls and the other are multicolored. It’s like four colors primary colors on it.

    Well, he labeled one as a globe. So he couldn’t pretend that they were just playing balls and the other ones were weather balloons. And so he couldn’t engage in any play because he was stuck on the perception of what the qualities were, which is pretty telling for a child that this was a pretty bright little boy. I found it useful in terms, and I also made sure that the children that I’m doing the ADOS with have that opportunity to explore the materials before we get into any play because as we know these kids are not incidental learners.

    I sometimes will use the CARS and also the social responsiveness scale, the BASC-3 [00:51:00] which Marnee mentioned. And there’s a criterion reference checklist, I’m not sure if it’s still available on the web, but I’d be happy to share it with people, that came out of the Kentucky autism manual that was probably 10 or 15 years ago. What I like about it is it has a whole bunch of behaviors that can be challenges for children on the autism spectrum.

    And I like to use it with multiple team members because it goes through some of the stereotypical behaviors, it goes through social communication difficulties and it’s like a 3 or 4-page form. But I just think it’s invaluable because it’s a lot of detail and you can compare what other people’s experiences are across settings. So again, it’s not in the information that we share but I found it pretty helpful.

    And I think why seek the diagnosis if the kids are already getting services as a child with a vision impairment, I’ve gotten that repeatedly from people. It’s like, oh, we don’t want to talk about the [00:52:00] big A. It’s because, and I’ll quote, a young man who was on an Asperger’s autism listserv for folks with vision impairments, he said, “Asperger’s causes me many more problems across a wide spectrum which blindness does not do, and has ever since I was a small child. The symptoms of both autism and depression had been devastating throughout. While I was growing up my tantrums from sensory overstimulation were attributed to my being a spoiled child, and I was treated as such, leaving me with a sense of inferiority and hopelessness”. So I thought that was pretty telling.

    And it really from a programming perspective, and as somebody that works in this field, it’s really the autism that needs to drive the bus with the strategies for kids with vision impairments laid over the top of that. And actually, a number of the strategies that are used with children with autism spectrum disorders and visual impairment are as comparable to what others [00:53:00] used with deafblindness. So calendar systems and people will say, well, gosh, how can you use visual systems? Well, what you do is, some of the visual systems for those kids that are low vision and you use touch tell systems or tangible systems for kids that don’t have usable vision. So whether it’s braille or objects, symbols and things like that to support their understanding. And let me be quiet. Any questions or thoughts? Marnee, anything to add?

    Marnee: Terese, I’m curious because I have a bias, what do you think about super identical population with kids with of VI? I think the thing that I struggle with always is for some kids there’s almost a magic moment as they acquire language, as they acquire experiences. What we see are some of those behaviors that just are ameliorated or greatly reduced? [00:54:00] I don’t know. Do you unidentify them? What do you do?

    Dr. Terese: You mean, do you unidentify them if you diagnosed him with an autism spectrum disorder or what?

    Marnee: No. I mean, these are children that may have been diagnosed by the age of 8, above the age of 5 or 6 as having autism. And it seems to be very different when you look at them two years down the road. But I think parents are often stuck on the autism diagnosis too. I’m just curious what you do, what you recommend?

    Dr. Terese: Well, I recommend caution and sometimes to proceed as if they were on the autism spectrum because of the support from a vision and language development perspective, that they can be really important and really useful strategies to be used to support their language development. So I don’t rush to [00:55:00] diagnose a child with a visual impairment as autistic before the age of 4 or 5 because I think we really need to look at the interventions that the children are needing. And that’s where I even whether it’s hand function and those things.

    And again, the need to look at the whole cluster, Marnee, beyond just the language like, are they having difficulties with transitions? Are they body rigid when people are approaching them from a social perspective? So I think you have to look with a very careful eye for what the presentation is.

    Marnee: Yeah, and I think that was really… and I guess that explained the heart of what I believe as well, that if the child has had some intervention to see where they are, be sure that you carefully plan that that’s sensitive to both needs.

    Dr. Terese: [00:56:00] That’s right. And I think what, Stella Chess actually said when she was looking at very young children with spectrum disorders, she said the children with autism, they just look so different than the kids with vision impairments without autism spectrum disorders, in terms of some of the responsivity and things that we would do typically developing kids with vision impairments just don’t resonate necessarily with the kids with autism spectrum disorders. So it’s something that she talked about.

    Marnee: And in fact, my experience has been with some of them. Not only is it not helpful, but it really results in escalation behavior […]

    Dr. Terese: Absolutely. Well, that’s one of the things, Jeremy, as a former teacher of the visually impaired, I did my internship at the teach program back in the late 80s. And I was there for about 2 or 3 weeks and I called my colleagues in Maine and I said, 3 of the kids on my caseload, 2 of which [00:57:00] had optic nerve hypoplasia were on the autism spectrum. And that’s why all the things I did as a teacher of the visually impaired were not working because I needed to approach them through autism.

    And once, we set up some programs and stuff for them those kids really flourished. But doing what we do as TVIs is often providing multi-sensory stimulation simultaneously along with language. And you can basically cause a child with the spectrum disorder to shut down because they’re just overwhelmed with the social and sensory overload. So anyway, I’ll be quiet now.

    Dr. Sharp: No, this is great information. And, gosh, I feel like we could do separate multi-hour episodes on each of these little areas. 

    Dr. Terese: Well, Marnee and I both do day and two-day-long workshops on some of these topics. So trying to distill it into the 10 or 15 minutes is a [00:58:00] challenge but an exciting one. So, thank you.

    Dr. Sharp: Sure. So I wonder just in the interest of time should we move on to May, to be able to talk a little bit about deaf-blindness and how that impacts our assessment process?

    May: Yeah. Like Terese mentioned, these could be hour-long, several days long, even whole week-long training for each of these topics. They’re so complex and we’re always learning new things as in research and products, new things come out. So deafblindness. I’m glad that we’re touching on this area since there’s a lot of misunderstanding around visual impairment and additional disabilities.

    So like I mentioned in episode [00:59:00] one, deafblindness is more than just a summation of the impacts of visual impairment and hearing impairment. Deafblindness is better viewed as a multiplication problem since there are additional cognitive needs that should be addressed when a student has a combination of both visual and hearing loss. These needs might not be present when we only have one of the sensory modality impairments.

    And so, like Stephanie mentioned, you don’t need to be totally deaf or totally blind to qualify under deafblindness. We can provide you the IDA code where it goes into the details of that. But a lot of times kids might be missed because their team might be like, oh, they’re not deaf. They just have a hearing impairment. So they’re just going to have VI be their name because they’re already eligible. But like Terese mentioned, it’s not [01:00:00] so much the point of labeling a student but making sure that we provide the appropriate interventions and provide access to whatever services and accommodations that might be most appropriate to help the student progress.

    I’m trying to go fast. To go back to what Terese mentioned a little bit about using objects and how that could be really useful for students with multiple disabilities or students with visual impairments who are at the more functional cognitive level or for students who are deaf-blind, there are different object systems that you can buy. Some are pre-made from stacks. The link will be in the show notes. But standardized tactile augmented communication symbol. I know my speech-language pathologist, Rebecca Henry likes this a lot. [01:01:00]

    There’s different or pre-mounted objects, symbols, and these are nice. Of course, you can use real objects from the environment but because they’re mounted, it becomes something different. This is a symbol rather than an actual cup that I might use and try to drink out of. So these can be nice to use for making objects schedules. So like Terese mentioned, you might use objects scheduled and move up to picture schedules with students who have autism but students with visual impairments, you might stick with the object schedule if that image doesn’t really have any meaning for them.

    And it’s important to use objects that are relevant for a student. For example, this symbol for a lunchroom is a spoon but for a student who is just finger feeding, they might just want to use maybe a container object to represent if they usually have snacks coming from a container. So that’s more [01:02:00] representative of lunch for them. So there is this pre-made sense that you still got to always personalize and individualize what tools are being used for our students. Sorry, I’m going to jump it all over the place.

    Dr. Sharp: Sure, that’s all good.

    May: Luckily at California School for the Blind, we are on the same campus as one of the California Schools for the Deaf, there are two of them in Fremont and Riverside. I luckily was able to communicate with one of their audiologists. And a lot of times people might look at audiograms and be misled if you’re not trained to think like, oh, a student might seem to be doing well but the audiogram might mislead people to think that a student is hearing and understanding.

    So when there are high frequencies that are compromised, the student might not have [01:03:00] access to the high-frequency sound that makes speech intelligible. Examples of high-frequency sounds are the voice as, I’m not a speech-language pathologist so I probably could not be doing the right sound for S F T H K T. So these not only provide the difference between words like backed and back but are also essential for plurals, tense markers, and even more critical for a youngster learning a language.

    These aided responses that they might get with a hearing aid or cochlear implant can give a false representation of what the individual hears and actually understands. So although they might hear some sound provided in the sound field, it’s not exactly what is required when attaching meaning to the words and language that they’re hearing. So they might [01:04:00] show like a pass or some level of hearing on a high-frequency field but what meaning are they actually attaching it? So going back to the concept of what is relevant in a clinical testing environment, and what happens in actual real life.

    So at times, students with deafblindness will need some extra help with social skills because like our students who have just period pure “social impairment,” there are going to be a lot of missed opportunities for incidental learning. So learning that happens naturally from observing and interacting with your everyday environment. So just like our students with visual impairments, you’re going to want to provide a lot of hands-on and experiential learning opportunities for them to develop meaningful understanding of new concepts. This goes along with what Carol was mentioning.

    When [01:05:00] it comes to picking out tools for an assessment, it’s a really big challenge because just like kids with visual impairments, students who have deafblindness present with quite a variety of strengths and needs. So what might be best for one student might be totally inappropriate for another student. So going back to our theme from episode one, consult and collaborate. You want to collaborate with your TVI and deaf or hard of hearing specialists, you have an audiologist on the team and your speech-language pathologist, and an intervener.

    I believe that interveners are not being used in every part of the United States but intervenors are specially trained paraprofessionals who facilitate communication and the student’s experience with the world around them. So a lot of times with a student with special needs who has an aid, you might [01:06:00] say like, oh, we should rotate the aids around so that the student doesn’t become dependent on one adult but this is a very different type of specialized player professional. They learn the student’s way of communicating and providing language support whether it be through American Sign Language, or there could be there’s so much to this.

    It seems like it’s hard to go into depth with all of it, but basically, you want to have one person who understands how that student communicates present during the evaluation. You don’t want to have a random person who knows ASL because then that person won’t necessarily know how this particular student communicates. There might be different needs and practices that the intervener would know.

    So that makes it even work difficult for interpreting, [01:07:00] because we know even for like if you’re interpreting a test in Spanish, for example, it’s not going to be exactly the same. So going back to what Carol was saying, qualitative interpretation is probably going to be a lot more meaningful and helpful than scoring things out and providing standard scores. There are various informal assessments tools that are specifically made for students who are deaf-blind or who have visual impairment and muscle pull disabilities. And these are typically for students who are in the earlier stages of development no matter what their chronological age is.

    So the Hometalk is an assessment tool to use with parents and care providers. It gives you a really broad picture of the student’s skills and interests and personalities. It’s a [01:08:00] questionnaire. How we all learn is another well, it’s not specifically an assessment tool, but it does provide technical assistant and it does have different checklists like preference inventories, and looking at how the student really takes in different sensory information and which ways he might best engage a student to be an active participant because with similar to students who have a visual impairment, students who are deaf-blind, if they aren’t provided adequate supports and proper setup for their environment, there’s a high chance for them to become passive people in their environments and not be active learners.

    So there has to be a lot of care taken to set up the environment correctly. The Communication Matrix with our SLP friends to ease for students who have not yet established a form of communication of [01:09:00] these skills assessments from Texas. That’s another one that’s an effective tool for looking at strengths and weaknesses in social communication, emotional development, looking at their motor skills, basic concepts, representation, and cognition, child guidance strategies.

    The Van Dijk Approach to Assessment book also provides lots of ideas for assessment. It guides your observations to looking at behavioral states, orientating responses, learning channels, approach memory, social interaction, communication, and problem-solving. There are many others, but a lot of them go back to Piaget Jean’s theory of development looking at how a student is using the sensory information that comes in, how are they problem-solving if they are starting to independently trial [01:10:00] different things, or how much facilitation is needed?

    Another thing that is really important is that we need to look at the daily living skills for these students no matter if they’re lower functioning student or a student who is academically on track or academically advanced. A lot of their daily living skills might be facilitated for them or done for them by adults who might be really well-meaning but we really need to enhance their quality of life and long-term thinking.

    We need to help support these students to learn how to do daily activities independently. So dressing, bathing, personal care, and even orientation mobility- how to get around independently. All of these affect their mental health. So a lot of students who are defined as students who are “purely visually [01:11:00] impaired”, have a high percentage of mental health challenges that are presented due to not having true friends or having feeling a little bit helpless or so dependent. So having independence in their compensatory skills like braille or using their right hand to be able to navigate independently is so important.

    A lot of times I feel our evaluations focus so much on the cognitive and academic, but these independent adaptive living skills are so important for their quality of life as they transition on past school.

    Dr. Sharp: Yes, to all of that. Yes, they are. It’s funny. It’s I think a good note to start to wrap up just for recency sake. I think with the timing, my episode on adaptive functioning will have come out relatively recently to this one. [01:12:00] So it’s nice tag team piece of information. I know that we just scratched the surface with so many of these topics and y’all just gave us like a tour de force of introduction to working with these kiddos. I think these are episodes that folks will definitely go back and listen to hopefully, multiple times and different sections depending on what their interests are, who they’re working with.

    So just as a way to start to close, first of all, thank you all for being here and for dedicating so much time to doing these two episodes. I think that folks are going to take a lot away. There are a ton of resources in the show notes both from presentations and materials that you all have put together but also [01:13:00] resources from other folks.

    For someone who would love to start to learn more about this area, is there anywhere in particular that you might point people to just to start to weigh in and start to get some working knowledge and maybe continue down the path? Where should somebody start if that’s possible to identify?

    May: Terese, I see you’re hand. So you should go first.

    Dr. Terese: Well, one thing and it’s going to be updated is Marnee’s book called Making Evaluations Meaningful. The Texas School for the Blind is supposed to have that out in December. We’re all keeping fingers and toes crossed, but Marnee’s first book was such a [01:14:00] powerhouse of information and I can’t suggest that more strongly than that.

    I think the other thing is to watch some of the various webinars that we’ve all presented on. I think too, feel free to contact us in terms of questions. I think we’re all pretty open to getting some questions asked of us. May, what else would you add?

    May: I would just say the intelligence testing document that was posted on APH that Marnee and Carol both contributed to you along with Stephanie Goodman. I feel like it’s a brief, maybe 10 or 11 pager that is so straightforward. So someone who’s brand new could access that freely online and get a whole lot of good information to start wrapping your brain around assessing students with visual impairments.

    Dr. Terese: [01:15:00] Connecting with TVIs.

    Marnee: Well, then I will add that I actually heard that it’s not going to be out in December because I’ve got the draft that I’m editing for my goodness surprise under the tree. I think they’ve decided that the book will be available online as well as in a hard copy. If I stay focused and don’t have any fun over Christmas, it will be ready.

    Dr. Terese: Well, we wouldn’t ask you to do that, Marnee.

    Marnee: Not much chance, but the whole idea of that is it’s got chapters on the starting thing in terms of how do you start an evaluation and then each chapter on the different eligibilities and strategies instructional with each of them.

    Dr. Terese: And as a valid point, the last one is superb.

    Marnee: Well, that’s very nice. [01:16:00] I look at it now and I can see are the typos and things I would have done differently. So I appreciate the feedback.

    May: Marnee is so humble as always. People have called it the VI valuation Bible. So, really, once that new one comes out I know [crosstalk]

    Marnee: No, it was a work of love. So I hope it helps.

    Dr. Sharp: I’m sure it will.

    Dr. Carol: It will be, as May said, the Bible.

    Marnee: Well, thank you. I will sit under the Christmas tree and work on it every single day.

    May: Real quick too. I think that people can check out if they’re new to the world of evaluating students with visual impairments, Carol’s doctoral dissertation is posted online and it’s wonderful. [01:17:00] It’s called Psychoeducational Assessment of Students Who Have Visual Impairment: Perspectives of Teachers of Students Who Are Blind or Who Have Low Vision and School Psychologists. It’s a great read to understand this field. And Carol also added a chapter with Dr. Jerome Sattler. Most people have Sattler’s book and chapter 20 of the sixth edition of Foundations of Behavioral, Social, and Clinical Assessment of Children. So chapter 20 is a topic dedicated. Oh, and I see Carol right there, So go ahead, Carol. This is yours.

    Dr.Carol: Not every university requires that second volume to be purchased including my own.

    May: It should be.

    Dr. Sharp: Sounds like you need to talk to somebody there.

    Dr. Carol: They know.

    Dr. Sharp: You have so many good resources.

    Dr. Carol: I don’t know [01:18:00] if he’s going to go for a 7th edition, but I’d like to suggest any one of these people here be the one to go off for a chapter with him.

    Dr. Sharp: Well, between all of you, there’s so much knowledge. I’m just, again, grateful that I was able to spend as much time as we have with all of you. And really for listeners, the show notes are packed with resources. So go check those out. I really can’t say enough thanks. This has been great.

    Dr. Terese: And our pleasure.

    Dr. Carol: Yes.

    Marnee: And fun.

    Dr. Sharp: Oh, good. Hopefully not too much work. Hopefully.

    Dr. Carol: I’m just happy to be considered still relevant.

    Dr. Sharp: Oh my gosh. Absolutely.

    Marnee: Well, and I think all of us require to see younger people who are interested in the field and are going to carry on. So that’s [01:19:00] nice. It’s worth any effort on our part.

    Dr. Sharp: It’s very much appreciated. It’s amazing to live in a time when we can do something like this and spread this knowledge to as many folks as we can. That’s the true gift. Well, thank all of you. Enjoy your holidays and maybe we’ll bump into one another again in the future.

    Dr. Terese: Cheers.

    Marnee: Thanks so much, Jeremy.

    All: Bye, bye.

    Dr. Sharp: Okay, y’all. Thank you for listening to these episodes. As you could tell, this is just a ton of information to take in for someone who is not an expert in this field. And I would encourage you certainly to check out the transcript for these past two episodes or maybe listen to it two times. And the hope is that you take away what you need to take away, and you can always revisit this material and the many [01:20:00] resources that we listed in the show notes to get more education, more information, and help these kids as best we can. So thanks again for listening. I hope you’re all doing well. I will talk to you next nect time.

    The information contained in this podcast and on The Testing Psychologist website is intended for informational and educational purposes only. Nothing in this podcast or on the website is intended to be a substitute for professional, psychological, psychiatric, or medical advice, diagnosis, or treatment.

    Please note that no doctor-patient relationship is formed here. And similarly, [01:21:00] no supervisory or consultative relationship is formed between the host or guests of this podcast and listeners of this podcast. If you need the qualified advice of any mental health practitioner or medical provider, please seek one in your area. Similarly, if you need supervision on clinical matters, please find a supervisor with expertise that fits your needs.

    Click here to listen instead!

  • 260. Assessment with Visually Impaired Kids, Part 2 w/ Dr. Carol Evans, Marnee Loftin, Dr. Terese Pawletko, May Nguyen, and Stephanie Herlich

    260. Assessment with Visually Impaired Kids, Part 2 w/ Dr. Carol Evans, Marnee Loftin, Dr. Terese Pawletko, May Nguyen, and Stephanie Herlich

    Would you rather read the transcript? Click here.

    Welcome to the second episode in a two-part series on assessment with visually impaired kids! I’m honored to have five highly accomplished and knowledgeable women on the show to discuss this complex and nuanced topic. Each of the guests brings their own unique perspective and experience to the discussion, creating a rich conversation that covers a LOT of ground. In this second episode, we dive deep into the overlap of VI and other learning or behavioral concerns. Topics that we discuss include:

    • Qualitative and non-standardized assessment practices
    • VI and learning disorders
    • VI and autism spectrum disorder
    • Deafblindness

    Cool Things Mentioned

    Intelligence Testing of Individuals Who Are Blind or Visually Impaired by Stephen Goodman, Marnee Loftin, and Dr. Carol Evans is posted on the American Printing House for the Blind and is an excellent resource for guidance on testing students who are blind or visually impaired (2011). 

    Psychoeducational Assessment of Students Who Have Visual Impairment: Perspectives of Teachers of Students Who Are Blind or Who Have Low Vision and School Psychologists is a doctoral dissertation by Dr. Carol Anne Evans (2007). 

    Most school psychologists already have assessment textbooks by Dr. Jerome M. Sattler on their bookshelves since many graduate programs include his series of books as required foundational reading. In the Foundations of Behavioral, Social, and Clinical Assessment of Children, Sixth Edition, chapter 20 is dedicated to visual impairments and co-authored by Dr. Sattler and Dr. Carol Anne Evans (2014).

    Previous Webinars & Handouts

    Making Evaluations Meaningful was written by Marnee Loftin (2006). A new edition will be released through the Texas School for the Blind and Visually Impaired Store hopefully sometime soon. Marnee generously has permitted excerpts from her book to be posted on Paths to Literacy.

    Jack Dial and Cognitive Test for the Blind

    The California School for the Blind Assessment Team has created a self-paced CVI Course using the Google Classroom platform. The class is free and perfect for anyone (teachers, paraprofessionals, specialists, families, etc.) who would like to gain a better understanding of

    Cerebral/Cortical Visual Impairment (CVI). The course covers what is CVI, causes, characteristics, screening and assessment tools, the CVI Range, and report writing.

    BRIEF-2

    BASC-3

    Kancherla et al

    Childhood vision impairment, hearing loss, and co-occurring autism spectrum disorder 

    Autism Spectrum Rating Scale

    CARS

    ASRS-2

    STACS: Standardized Tactile Augmentative Communication Symbols Kit 

    To gather more meaningful data on adaptive behavior, consider Independent Living Skills (ILS) Checklist from Michigan Department of Education Low Incidence Outreach, which is a great tool to consider to gather information collaboratively.

    Assessment Tools to Consider for MD & DB

    • Child-guided Strategies: The Van Dijk Approach to Assessment book contains guidelines for conducting an assessment for children with sensory impairments and multiple disabilities following the Van Dijk approach (e.g., no standardized protocols or materials, follows the lead of the individual child). Video examples of this approach are available.
    • Strategies for Assessing and Teaching Students with Visual and Multiple Disabilities by Millie Smith. The Sensory Learning Kit (SLK) – Guidebook and Assessment Forms are available from APH. 
    • Expanded Core High School Readiness Checklists from Utah School for the Blind address different grade ranges. For students who have multiple impairments, use the alternative checklist for students with severe multiple impairments in the PK‐K checklist on pages 50 to 51. You can request a free copy of the checklist by completing the Expanded Core Curriculum – High School Readiness Checklist Request Form
    • Learning to Listen Listening to Learn contains an informal checklist that includes items in the areas of auditory attention (maintaining attention, figure-ground discrimination), auditory discrimination, auditory memory (concepts and directions, sequence), listening skills for reading readiness, and social listening. 
    • The Personal Preference Indicator enables the planning team to identify and focus on preferences connected to choice-making activities, person-centered planning, and self-determination efforts. 
    • Communication Matrix: The Communication Matrix has created a free assessment tool to help families and professionals easily understand the communication status, progress, and unique needs of anyone functioning at the early stages of communication or using forms of communication other than speaking or writing. This is available in multiple languages.
    • How We All Learn (Campano, 2016): “This workbook is not an assessment tool, but rather a structured tool to provide technical assistance for educators and related service providers working with students who do not have a formal communication system.”
    • Home Talk is “an assessment tool for parents and care providers of children who are deafblind and who have other disabilities…HomeTalk can provide a broad picture of your child’s skills, special interests, and personality.”

    ​​Podcast Panelists’ Bios and Contact Info 

    Featured Resource

    I am honored to partner with PAR for 2021 to bring you featured items from their catalog! Listen to each episode for specific product recommendations and links. Learn more at www.parinc.com.

    The Testing Psychologist podcast is approved for CEU’s!

    I’ve partnered with At Health to offer CE credits for podcast episodes! Visit this link to access current and past episodes available for CE credit. You can use code “TTP10” for a discount on ALL the course credits you purchase from At Health!

    About Dr. Jeremy Sharp

    I’m a licensed psychologist and Clinical Director at the Colorado Center for Assessment & Counseling, a private practice that I founded in 2009 and have grown to over 20 clinicians. I earned my undergraduate degree in Experimental Psychology from the University of South Carolina before getting my Master’s and PhD in Counseling Psychology from Colorado State University. These days, I specialize in psychological and neuropsychological evaluation with kids and adolescents.

    As the host of the Testing Psychologist Podcast, I provide private practice consulting for psychologists and other mental health professionals who want to start or grow psychological testing services in their practices. I live in Fort Collins, Colorado with my wife (also a therapist) and two young kids.

    Ready to grow your testing services? Click below to schedule a complimentary 30-minute pre-consulting call!

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  • 259 Transcript

    Hello, everyone. Welcome to The Testing Psychologist podcast, the podcast where we talk all about the business and practice of psychological and neuropsychological assessment. I’m your host, Dr. Jeremy Sharp, licensed psychologist, group practice owner, and private practice coach.

    This episode is brought to you by PAR. PAR has recently released the Feifer Assessment of Childhood Trauma, or the FACT, the first and only comprehensive instrument measuring how stress and trauma can impact children in a school-based setting. You can learn more or purchase the FACT teacher form by visiting parinc.com\fact_teacher.

    Hey, everyone. Welcome back to another Holiday Hopes episode. If you haven’t caught the previous Holiday Hopes episodes, this is a seven-part series that is meant to carry you through the holidays. The idea is that if you take a suggestion from each of the episodes and put them into practice for 2022, then you can make some pretty big changes in your business.

    The Holiday Hopes series got stretched out a little bit because frankly, I went out of town and forgot the hard drive that had a bunch of podcast episodes on it. And so, I couldn’t get them to my assistant in time. And here we are with Holiday Hopes number six coming out a few weeks after number five. I apologize for that, but we should be back on track with episode releases. And I hope that you are staying tuned.

    Let’s see. Before we get to the conversation about support staff or assistance, I want to invite any of you who are at the beginner or advanced stage of practice to reach out if you would like a group coaching experience where you’ll get some accountability, support, and guidance in building your practice. I’ve got cohorts of the Beginner Practice Mastermind and Advanced Practice Mastermind starting in mid-January and February. And there are, I think 1 or 2 spots left in each of those. If you’d like more information, you can go to thetestingpsychologist.com/consulting and schedule a pre-group call. And we’ll figure out if it’s a good fit or not.

    All right, let’s talk about getting some assistance in your practice.

    Okay, y’all. I am back to talk about support staff and how they might help you in your practice. Again, these Holiday Hopes episodes are not meant to be super extensive, just little bites, 5, 10, maybe 15 minutes to get you thinking about some principles and ideas and your practice. Today, we’re talking about support staff like I said. I’m going to touch on a few points in considering support staff.

    The first is just when to know if you’re ready for support staff. If you’ve been listening to the podcast for any amount of time, you can probably answer that question without me having to make it explicit, but just in case that’s not the case, my answer is you’re ready for support staff the moment that you open your private practice, the reason being, we are luckily, fortunately, one of the highest compensated professions out there in the United States. And to let yourself engage in administrative tasks means that you are effectively losing the amount of money that you make per hour for every hour that you work on these administrative tasks, which effectively means that you are paying a psychologist’s hourly rate for an administrative role. And that just does not make economic sense.

    It also doesn’t make emotional sense because when I’m consulting with folks, one of the biggest points of burnout is falling behind with administrative tasks and not having enough time to do the work that we’re actually trained and paid to do, which is conduct assessments and write good reports.

    So I think you’re ready for support staff the moment that you open your doors. The earlier that you can start delegating and offloading tasks, the better. Just to plant that seed, if you’ve already started your practice, that’s totally okay. I personally did not hire support staff until, at least 3 or 4 years in. And I reaped the… what’s the opposite of benefit? …I reaped the consequences of not having support staff for those years. So it’s never too late, but I would say, get started earlier rather than later.

    If you’re thinking to yourself, well, I don’t have the money to pay support staff, or I don’t know what I would have them do, again, I would just encourage you to think about the math involved. So, for every hour that you spend doing support tasks, let’s say your rate is $200 an hour, then for every hour that you spend, you can get at least 10 hours of administrative support, so you can afford it. That’s the short story.

    Most of the time, especially when we start out, we don’t need that much support. So 10 hours, even 10 hours a month would go a long way. So, think about that as you’re doing the math and figuring out what you can afford or not. I might say that cannot not afford to get support staff because then any hour that’s freed up of your own, you can spend that doing clinical work. You can not do clinical work. You can spend it visioning and brainstorming for your business. There are any number of better activities for you to do than support activities.

    And if you’re thinking, I don’t know what a support person might do for me. Well, I would encourage you to basically start from zero. So take your clinical tasks and envision anything, literally anything else that you’re doing outside of clinical work, and make a big list of all of those items. And that’s a great place to start with support staff.

    Okay. So let’s say you’ve decided to investigate the possibility of a support person. Where would you look for these individuals? Well, it depends. If you want to go the route of a virtual assistant, which many practices do, there are several companies out there that specialize in virtual assistants for mental health practices.

    So what is a virtual assistant? A virtual assistant is just an assistant that does not work in your physical office. That person could be local, but most of the time that person is employed by a virtual assistant company that trains and assigns virtual assistants to mental health practices as a business.

    Virtual assistants are typically going to cost more than a local assistant or an in-office assistant simply because you are paying for the virtual assistant company to employ those individuals, train them, take care of any payroll or employment matters that might come up. They often have a group of virtual assistants so folks can step in if your assistant is out. So you’re paying for the luxury of all those things. The rates are going to vary depending on which company you go with. So I’d invite you to look around, but I would ballpark somewhere in the neighborhood of $25 to $45 an hour for a virtual assistant.

    There are plenty of companies that specialize in virtual assistants for mental health practices. The Productive Therapist is one. Move Forward Mental Health is one. And there are many others that we will link in the show notes. In fact, the Productive Therapist has a great resource list of many virtual assistant companies if they’re not the right fit for you. So you can look for that in the show notes.

    Let’s take a quick break to hear from our featured partner.

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    All right, let’s get back to the podcast

    Where should you look for a local assistant? So let’s say you want to hire someone local who might spend some time in your office, but they also might work from home a little bit. Typically, that person’s wage is going to be less than a virtual assistant.

    Some of the benefits of having a local assistant include: being able to interact with that person a little bit more closely, especially if they’re in your office, and paying a little bit less for their services. You can also employ them, which will give you presumably more control over the training and development of that individual.

    So, if you want to look locally, Indeed has been very helpful for us. You can also post in your local mental health Facebook group or listservs, look in universities, and of course, ask around for any friends of friends, because word of mouth can be very helpful in vetting individuals who you might employ in your practice. So plenty of options.

    The last point that I want to cover is training support staff. Folks tend to get overwhelmed with training their incoming support staff, which is understandable. We have so much information on our minds and oftentimes it’s really hard to envision pulling all that information from our brains and communicating it to someone else.

    So there are many ways to go about this, but generally speaking, I coach my consulting clients to one, go really slow. So only give your new assistant 1 or 2 tasks per week to prevent them from getting overwhelmed. Two, ballpark plenty of time for training virtual assistants.

    My rule of thumb, which I got from Jaime Jay from Bottleneck Distant Assistants, is taking the amount of time that it actually takes to do the task and multiplying that by 4. So 4X the task time, and that’ll give you a ballpark for how long you should spend training and individual to do that task. That’s a mistake that a lot of practice owners make trying to throw someone in and not spending the time to adequately train them.

    A great way to actually create training materials is to video yourself doing as much as possible. There are a number of different software options to help you do that. You can use something like Loom. You can use the screen recording feature in QuickTime if you have Mac. So there are lots of options, but just make video recordings, do screen recordings of you performing these important tasks and you can save those to a folder on Google Drive or my One Drive or whatever you use, or even to a hard drive, your desktop. And you’ll have a steadily growing training library for when that person comes on board.

    Now, there’s a lot to say about training individuals, of course, and training your support staff, but those are just a few tips to consider. So as we start to wrap up, just think about, if you have some tasks in your practice that you continue to do that you really shouldn’t be doing which again is anything outside of clinical work, I would highly consider finding some support staff to help you out.

    And if you aren’t willing to take that leap, then you can certainly spend some time digging into software solutions that might be able to automate some of those tasks for you. So baby steps toward delegating, whether it happens. Whether you’re delegating to a machine or to a person, be thinking about how to get some support in your practice so you are only doing the work that you should be doing.

    I hope that was helpful. If you have any questions or would like to talk further about support staff, like I said, I consult with folks all the time around efficiency in their practices and polishing up the business side of things. And of course, there are the two mastermind cohorts that are starting early in 2022. There’s a beginner practice cohort and an advanced practice cohort. So if either of those sounds interesting, you can get more information at thetestingpsychologist.com/consulting and schedule a pre-group.

    Okay, I’m going to leave you with that for now. Next time, we’re going to be wrapping up Holiday Hopes with the series episode number 7 talking about celebrations and making sure to take time to treat yourself when you can. Till then, take care. I will talk to you later.

    The information contained in this podcast and on The Testing Psychologist website is intended for informational and educational purposes only. Nothing in this podcast or on the website is intended to be a substitute for professional, psychological, psychiatric, or medical advice, diagnosis, or treatment.

    Please note that no doctor-patient relationship is formed here, and similarly, no supervisory or consultative relationship is formed between the host or guests of this podcast and listeners of this podcast. If you need the qualified advice of any mental health practitioner or medical provider, please seek one in your area. Similarly, if you need supervision on clinical matters, please find a supervisor with expertise that fits your needs.

    Click here to listen instead!

  • 259. Holiday Hopes #6: Support Staff

    259. Holiday Hopes #6: Support Staff

    Would you rather read the transcript? Click here.

    Welcome to the Holiday Hopes series! Holiday Hopes is a seven-part series to carry you through the next several weeks. Each episode will focus on one aspect of your practice that you might aspire to change in the new year. By the end of the series, you could potentially make significant changes in nearly all areas of your practice!

    This sixth episode in the series is all about hiring and training support staff. What better time to delegate some tasks and free up time than the new year? Here are a few ideas that I’ll discuss today:

    • When to know if you’re ready for support staff
    • Where to look
    • How to train support staff

    Cool Things Mentioned

    Featured Resource

    I am honored to partner with PAR for 2021 to bring you featured items from their catalog! Listen to each episode for specific product recommendations and links. Learn more at www.parinc.com.

    The Testing Psychologist podcast is approved for CEU’s!

    I’ve partnered with At Health to offer CE credits for podcast episodes! Visit this link to access current and past episodes available for CE credit. You can use code “TTP10” for a discount on ALL the course credits you purchase from At Health!

    About Dr. Jeremy Sharp

    I’m a licensed psychologist and Clinical Director at the Colorado Center for Assessment & Counseling, a private practice that I founded in 2009 and have grown to over 20 clinicians. I earned my undergraduate degree in Experimental Psychology from the University of South Carolina before getting my Master’s and PhD in Counseling Psychology from Colorado State University. These days, I specialize in psychological and neuropsychological evaluation with kids and adolescents.

    As the host of the Testing Psychologist Podcast, I provide private practice consulting for psychologists and other mental health professionals who want to start or grow psychological testing services in their practices. I live in Fort Collins, Colorado with my wife (also a therapist) and two young kids.

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  • 258 Transcript

    Dr. Sharp: [00:00:00] Hello, everyone. Welcome to the Testing Psychologist Podcast, the podcast where we talk all about the business and practice of psychological and neuropsychological assessment. I’m your host, Dr. Jeremy Sharp, licensed psychologist, group practice owner, and private practice coach.

    This episode is brought to you by PAR. PAR has recently released the Feifer Assessment of Childhood Trauma or the FACT. The first and only comprehensive instrument measuring how stress and trauma can impact children in a school-based setting. You can learn more or purchase the FACT Teacher Form by visiting parinc.com\fact_teacher.

    Hey everyone. I am so fortunate to bring you part one of a 2-part series on assessment with visually impaired kids. I have no less than 5 experts who are collaborating on these next two podcasts with me. [00:01:00] They are incredible. They have done so much across their lifespans to work with kids with visual impairments and they bring such a wide range of expertise to these interviews. It’s quite amazing.

    So these two episodes are very information-heavy. You will certainly want to read the transcripts or listen multiple times. And just know that we’re really just getting started and doing an introduction to many of these topics. The hope is that you might walk away feeling a little more comfortable working with kids with visual impairment. You might have a better idea of what to do, who to consult with, and how to provide the best support for these kids if they show up in your practice.

    I will briefly introduce the 5 of them. They have lengthy bios. I think we could take 20 minutes to read [00:02:00] the biographies of all of them. They will introduce themselves on the podcast as well. You can check out their full biographies in the show notes.

    To get started, Dr. Carol Anne Evans is a retired school psychologist and former teacher of students with visual impairments. She’s a consultant for the project TVISP at the University of Utah. She co-authored the chapter on visual impairments in Dr. Jerome Sadler’s 5th and 6th editions of Foundations of Behavioral, Social, and Clinical Assessment of Children. And she co-authored the guidance document, Intelligence Testing of Individuals Who Are Blind or Visually Impaired. She also consulted on the braille adaptation of the Woodcock-Johnson III.

    Dr. Marnee Loftin is a retired school psychologist who previously served the Texas School for the Blind and Visually Impaired for nearly 30 years. She also co-authored the guidance document Intelligence Testing of Individuals Who Are Blind or Visually Impaired. She published a book Making Evaluations Meaningful, which addresses the identification and development of IPS for students who are blind or visually impaired. A new edition of her book is coming out in 2022.

    Dr. Terese Pawletko is currently a pediatric psychologist. She started as a teacher of the visually impaired then moved on to be a school and clinical psychologist. After completing her postdoc fellowship at the University of North Carolina at Chapel Hill, she consulted with the UNC School of Medicine working with kids with chronic illnesses, kids and adults with autism and their parents, and related service providers. While at the Maryland School for the Blind, she developed the first program in the country for kids with visual impairment and autism. Since 2001, she’s been in private practice evaluating kids with [00:04:00] autism, visual impairments, and other learning and developmental challenges.

    May Nguyen is a licensed educational psychologist and nationally certified school psychologist serving the California School for the Blind Assessment Center. She is an adjunct faculty member for the school psychology program at California State University East Bay. She’s co-founder and CEO of the Resilient Minds Collective, a network of educational psychologists, school neuropsychologists, and marriage and family therapists who strive to support individuals of diverse strengths and challenges to see them achieve their goals.

    Stephanie Herlich has been a teacher of students with visual impairments and an orientation and mobility specialist for over 20 years. She is currently in the assessment center. Sorry, she is the Assessment Center Coordinator for the California School for the Blind in Fremont, California, and an educational consultant for exceptional teaching in Livermore, [00:05:00] California. Stephanie created the Beginning Braille six-part webinars series available on YouTube. She’s also the author of the Mangled Braille Program. Co-author of Getting to Know You, a social skills curriculum for students who are visually impaired and their sighted peers and contributing author of ECC Essentials Teaching, the expanded core curriculum to students with visual impairments.

    So as you can see, there is so much knowledge in these interviews and there’s so much to take away. So without further ado, let me bring you this very informative part 1 of my conversation with these fantastic women on assessment with visually impaired kids.

    [00:06:05] Well, hello everyone. Welcome to the podcast. As I said in the introduction, this is a first for me having so many amazing people on the podcast at once. So we have 5 of y’all. I’m going to attempt to do a little introduction of each of you here so that people can get oriented to your voices. So May, can you jump in and tell us a little about yourself?

    May: Yes, and thanks so much for having us all on, Jeremy. My name is May Nguyen. I’m a Licensed Educational Psychologist at the California School for the Blind Assessment Center Team. We provide assessments for children throughout the state of California. I’m also an adjunct faculty member at California State University East Bay and CEO of Resilient Minds Collective.

    Dr. Sharp: Awesome. Thanks. Stephanie.

    Stephanie: Hi everyone. I’m Stephanie Herlich. [00:07:00] I am also at California School for the Blind. I’m an Assessment Center Coordinator, a teacher of the visually impaired, and an orientation and mobility specialist.

    Dr. Sharp: Cool. Carol.

    Dr. Carol: I am a former teacher of the visually impaired, and then I really specialized in school psychology in middle age because the teachers in my area were complaining about the lack of valid testing for their students. And I said, well, what has to happen is somebody that knows vision needs to become a school psychologist. And everybody looked at me. So that’s why I became a school psychologist. I am retired from the practice of school psychology at this point, and a consult on a grant at the University of Utah to train school [00:08:00] psychology students and TVI students to collaborate with each other.

    Dr. Sharp: Nice. Thanks for being here. Terese.

    Dr. Terese: Hi, I’m Dr. Teresa Pawletko and I also am a former teacher of the visually impaired. I did that for five years before going to graduate school for school psychology and then on to post-doc and pediatric psychology. I’m currently a private practitioner based in Maine, but I track all over the US doing evaluations on kids with vision impairments and consult on autism and vision impairments.

    Dr. Sharp: Very cool. All right. Marnee.

    Marnee: Hi, I’m Marnee Loftin, and I’m a very happily retired psychologist. My training was not in vision. I did not have any experience at all, and I kind of wandered into the field and ended up enjoying it so much that I stayed for almost 30 years at the Texas School for the Blind.

    Dr. Sharp: That’s great. I knew that, but I had forgotten that. [00:09:00] I don’t know if I’ve ever mentioned. I have a really good friend who’s a teacher at Texas School for the Blind.

    Marnee: Oh, let’s compare notes later.

    Dr. Sharp: We should. Yeah, definitely.

    Well, I am thrilled to have all of y’all here. I think I originally contacted May and asked if she’d be interested and then all of a sudden we have 5 people who are interested and willing to do this. And as we were talking, I think this is going to shake out really nicely. We have a 2-part series on assessing visually impaired kids. That’s a topic that we’ve needed to talk about for a long time. I’m glad that we’re doing it right now that we’re finally doing it.

    So I want to jump in. In this first episode, we’re really going to focus on the background and definitions. We’re going to talk about collaboration and we’re going to lay some groundwork for just planning our evaluations. So I want to jump into it. I know we have a lot [00:10:00] to cover.

    Let’s start with the background. I think Marnee, you’re going to kick us off and tell us a little about the developmental course and some of the things we need to know generally about visually impaired kids.

    Marnee: Okay. Terrific. One of the things that I was fascinated by when I started at the school for the blind is it is such a complex population. As I said, I didn’t have any background at all. So my idea of visual impairment was what I’ve learned from reading a Little House on the Prairie. I had the idea that everyone was totally blind and they were all braille readers. And so what I’ve found is that there’s a tremendous variation in terms of the degree of vision loss, in terms of when it occurred, et cetera. And all of those variables are going to impact the developmental course of these [00:11:00] students.

    We’ll talk about some of those variables as we go through this first part, but I think what’s important to recognize is that all of them are going to have some differences in the developmental sequence based upon their impaired vision. As psychologists, it’s really important for us to understand what those are so that we’ll be able to interpret the data correctly.

    There are several great books and they’re referenced in here about what are the specific developmental, but I wanted to hit just two of them. I think the lack of vision results in some difficulty in achieving motor milestones, that if a child has normal vision, you might look at them and say that that is a child who really has developmental delays if they’re not walking if they’re not sitting up, et cetera, but most kids with a severe vision loss are [00:12:00] going to be a little bit delayed in those areas simply because they don’t have the visual impetus to move. It’s hard to get excited about moving your body if you don’t know what you’re moving toward. So they tend to be delayed in that area along with some other things that we can talk about another time.

    Socially, you also see an egocentric approach to the world and to the people in it. They have a difficult time understanding the viewpoint of others in taking the perspective. You’ll see that within their language as well.

    When I first went to the School for the Blind, I was pretty convinced that I was surrounded by a whole campus of children with autism because a lot of the early language looks very much like children with autism. You have the accolade like speech, you have the confusion of [00:13:00] pronouns. And for some reason, I never figured out in my course of working with the visually impaired. It clears up with most children. I think as they get the concepts to go along with the language, it doesn’t remain a problem.

    Terese can talk about that and break the tail as well as Carol, but it’s important to know that those things vary. You’ll see, in terms of behavior or some passivity oftentimes with kids with severe visual impairment some increase in self-stand behavior, which again, convinced me that I was surrounded by children with autism. So those are some of the general things that you will see.

    I think when you’re looking at the difficulty in determining the difference, let me back up, sometimes it’s hard because there can be other conditions that affect the [00:14:00] developmental milestones. So you have to be able to determine what part of the vision may be affecting that. So it’s always going to be critical to look at the age of onset, the basics of the etiology, the age at which it occurred, and then the interventions that the child has had. Those are the most critical in terms of correctly interpreting the differences in presentations. So that’s a very nutshell version.

    Dr. Sharp: Sure. Well, I know that we’re going to dive a little deeper here as we go along. So I think that’s a nice kickoff. I’m going to switch it up a little bit, at least from our outline, and go a little out of order in a way that I hope makes more sense. Stephanie, I’m wondering if you might be able to jump in and talk about the different types, for lack of a better word, of visual impairments. And we’ll take it from there [00:15:00] before we go to medical complexity.

    Stephanie: So we often use the terms congenital versus acquired or adventitious blind students, congenital meaning that they are blind from birth or no visual memory, and then acquired, they lost vision later.

    And there’s a real difference that we see in students who are congenitally blind I think in terms of… my perspective often comes from the educational impacts is what I’m looking at. And so, really a little bit of what Marnee touched on is that we really need to bring the environment to students. And it’s all about in the early ages of experiential learning because they’re not gaining that information from the environment around them.

    And then the other piece of this, which I think you were alluding to, Jeremy is we have a whole continuum [00:16:00] of students in terms of students with low vision all the way to students who are functionally blind. And then we also have students with additional disabilities along that continuum- students with additional disabilities who have low vision, and students with additional disabilities through functionally blind. And so, there are no two students that are alike.

    The legal definition of legal blindness is different than what we are working with in the school. In the schools, we talk about the educational impact. If a student is educationally impacted by their visual impairment, if there’s this suspicion of that, then we would evaluate that and possibly bring them onto our caseloads. And so that’s something to really be aware of is that legal definition is [00:17:00] different from the educational definition.

    It is the teacher of the visually impaired that usually determines whether or not a student is going to be a braille reader, and that’s based on our assessment that’s called the learning media assessment. And so not all students with a visual impairment are going to be braille readers. We would have students using large print technology, dual media, and braille readers.

    Dr. Sharp: I get you. Just as we get into this, there are so many layers and nuances to think about. Carol, do you want to elaborate a little bit? We have this topic of ocular versus brain-based. I wonder if you might be able to jump in and talk about that a [00:18:00] bit.

    Dr. Carol: I’d be happy to, and thank you very much for inviting me. We tend to sometimes think that the etiology of vision loss is either originating in the eye itself or based on insult neurologically, but you can have both. I’ll give you a few examples of some eye-based. I’m looking at my file on eye conditions here which I’d be happy to share with anyone who would like it. But other than refractive errors like nearsightedness, farsightedness, astigmatism, we have a whole range of things that can be caused by defects in the eye and the surrounding [00:19:00] organs of vision.

    We have congenital cataracts and that tends to be hereditary. It runs in families. It used to be that they wouldn’t remove cataracts for six months or a year and people went around their whole lives with low vision because of that. And now they take cataracts off typically as soon as they are developed, as soon as they’re noticed, excuse me, as long as the child is healthy enough for surgery because the retina undergoes physical development because of exposure to light. And so, you can have a really serious delay in the development of vision if you don’t remove those early.

    Then we have early diabetic retinopathy. [00:20:00] There are children born or very early in life diagnosed with diabetes. And then they have to really watch out for indications of vision problems. I knew an adult who was diagnosed with diabetes based on his eye exam. The doctor noticed changes in the retina and he didn’t even know he was diabetic.

    Then we have Retinitis pigmentosa which is a deterioration of the retina. And that tends to typically start in the periphery and gradually encroaches on the central part of the visual field. And there’s no cure, but treatment may slow progression.

    We also have juvenile macular degeneration which is a loss of vision in the [00:21:00] central field typically. And they have decent peripheral vision, which is really good for travel but eventually, you have reduced acuity in the peripheral part of the visual field.

    And then we have a traumatic brain injury. Here’s where we get into neurological causes of visual impairment. Traumatic brain injury can also include stroke and sometimes babies have strokes in utero. They are born having had a stroke and so they can have many different kinds of field deficits depending on the location of the stroke within the brain. We talk about [00:22:00] the visual cortex in the posterior part of the brain, but the whole brain sees, so the visual pathways travel through the whole brain and a stroke or some kind of traumatic brain injury can depend on which part of the brain is injured and how severely. So there’s tremendous variability in the qualitative aspects of vision.

    And then some eye disorders also have nystagmus as one of the features. And that’s a rapid involuntary movement of the eyes. It can be either horizontal or vertical or it can be circular. I’ve seen it. And if a child has a usable vision for schoolwork, [00:23:00] for reading, then you have issues of great differences from child to child depending upon what part of the field is affected.

    Sometimes, that’s treated with eye muscle surgery to reduce the extent of the movement and no point training, which means to train the gaze in the direction that reduces the extent of the movement and postural changes. And another thing that can be done is the use of magnification or bringing material closer to enlarge the image. Typically, nystagmus slows down the speed at which children can read because the image is moving.

    Dr. Sharp: Right, thank you. [00:24:00] Just as you talk, a reflection, of course, this is obvious to all of you, I’m sure, but just echoing that idea that visual impairment is not just a monolith. There are so many different varieties. I’m really glad that we’re going to be able to dig in and just get more information on how each of these might manifest and what we might do. So that might be a nice segue, May, to talk about how this plays into the classroom. I love this difference between visual processing versus visual impairment. So could you speak to that a little bit?

    May: Yeah. And I know there’s so much we want to try to cover in a short amount of time, so I’ll try to keep it brief. So a lot of times school psychologists might not have many children with [00:25:00] visual impairments on their caseload since it is a low incidence disability. And so, when they get their first child who has a visual impairment, it might be the first time they’ve encountered a teacher of students with visual impairments, like Stephanie, an orientation and mobility specialist.

    And so they might assume like I did the first time I had my first VI case that the teacher of students with visual impairments would take care of all the academic assessment and take over the role of the RSP resource specialist or special education teacher on my assessment team. And I know some psychologists, they do the academic testing as well and might think, oh, the TVI would help with that because I don’t read braille. I’m not saying that everyone needs to learn how to read braille to assess students with visual impairments, but you need to work very closely [00:26:00] with a teacher of students with visual impairments. I’m going to shorten it to TVI to make it a little bit more efficient.

    But when we’re looking at what a TVI assesses, we’re usually looking at visual functioning and learning media. So how the student will best access their academic material. And when you’re starting to suspect a learning disability when you’re looking maybe at potential challenges with various processing areas, that’s when you might want to bring on other members to the team if you’re a school-based practitioner such as you’re a resource specialist or special education teacher or the psychologist doing additional testing, looking at processing and academics and you would collaborate with the TVI on how to best provide access to those different tests.

    We’ll go deep into that more [00:27:00] probably in a little bit, but one thing for psychologists to understand is that most TVI graduate training programs do not include training in standardized assessments. Many of the tools that TVI use are informal or criterion-referenced. So, we need to help them to understand how we need to provide the tests or how tests are interpreted, and they can help us to understand when is it better to interpret tests more qualitatively rather than quantitatively and help us to understand how we can try to test the limits when we’re looking at different modalities.

    Dr. Sharp: Can I ask you a question real quick? Are there, this is open to anyone, are there graduate programs out there that specialize in the evaluation and test? I’m thinking of psychological programs, but it could be SLP or any other field, but are there programs [00:28:00] out there that specialize in the assessment of visually impaired kids?

    Dr. Carol: I’m glad you asked that question, Jeremy. Yes, I am consulting currently with a program at the University of Utah that has a cohort. Well, it’s a 5-year grant. I’ll be 80 when it’s complete. So I’m there to pass on what I know before I forget it all. What they are doing is you have a group of students teaching the visually impaired and a group that are students in school psychology, it’s a graduate program, and they are learning. They are cross-training taking parts of some courses together so that they can learn this collaborative model of assessment.

    And it’s the [00:29:00] first one that I know about. I know that there have been programs where students are required to take a course in visual impairment in the course of their school psychology training, but this is the first program that I know of. And it would be wonderful if it would spring up all over the country. And then we would get a generation of people who know how to collaborate.

    Dr. Sharp: Sure. I was just thinking about how we didn’t get any training in grad school on assessing visually impaired kids. And like you said, it’s a low incidence disability but in children. So it’s still important though. And it’s just one of those areas. So, thanks for answering that. [00:30:00] Let’s go on, Stephanie.

    Stephanie: Oh, I was just going to say one thing real quick, just because I know most people listening now are school psychologists. And just to let you know that… I’m coming from California and every state operates a little bit differently. I do think the majority of states that a teacher of the visually impaired, in order to get that credential, is a graduate credential. And within the program, a big piece of it is assessment.

    Teachers of the visually impaired, like May said, do the functional vision assessment and a learning media assessment. But then also we see our role as TVIs, it’s collaboration. And I know this is a theme in our assessment program, and we will probably talk about it a lot through this podcast is so key because it is a low incidence population.

    We know [00:31:00] that all the specialties out there working with students who are visually impaired aren’t necessarily familiar, whether it’s a psychologist or a speech-language pathologist, or a physical therapist, or any other specialists. So our role is to really be there to help you understand, you being psychologists or whatever other specialty you are, the implications of visual impairment in assessment or how to work with our students. So that’s such a key message. It is like, talk to the TVI about how to best assess students so that they are as valid as can be.

    Dr. Terese: In addition, many TVIs have had lifelong relationships with the children that you are going to be evaluating. So some of the teachers, TVIs have been seeing these children since they were preschool or younger. So the wealth of information and experience [00:32:00] is beyond.

    Dr. Sharp: Sure. Marnee, I see you trying to jump in. What’s up?

    Marnee: I keep waving my hand like a purse trader. Texas is frequently very behind in terms of progress et cetera, but they really have done some great things in terms of assessment of this population. Texas has a fairly unique professional called an educational diagnostician. They do most of the testing in schools. And so two universities have really facilitated people becoming a master’s level TVI along with the diagnostician. So it’s really coming along in that area.

    The other thing that I thought was really cool, we have a statewide certification and licensure program in Texas where you have to take, I think it’s up to [00:33:00] 40 hours a year and a part of the training that you have to have it’s three hours in cultural competency. And they have added sensory impairment to that as an option for people. So again, I think it may not be an immediate fix, but it’s a step in the right direction.

    Dr. Sharp: Sure. That’s great to hear. Goodness. Before we totally move to collaboration and all the ways that that can and should happen, I wonder if we might backtrack, I mean, could any of you speak to just basic statistics around visual impairment and like how many… I know this is going to differ, but what percentage of kids in public schools versus…

    Marnee: Yeah, I just finished a workshop. So I tracked that down in terms of the number of children in the US who are special [00:34:00] Ed and served under VI is less than 1%. And it’s like 0.4%, incredibly small number.

    Dr. Sharp: Sure. I might be getting too much in the weeds here. Just let me know if that’s the case. What percentage of those kids are in public school versus like a Texas School for the Blind or a school specifically for kids with visual impairment?

    Dr. Carol: The majority of the kids… Go ahead, Marnee.

    Marnee: I was just going to say for a while, we had yearly conferences with psychologists at the different schools, but I think the whole movement in the states has been children remaining in their public school and being [..]. And I think all of us have tried to come up with special programs. Like at Texas, they have summer programs, they have various things like a space camp, a different advanced placement type classes. And I think [00:35:00] the commitment in most places is that kids need to be with their families. And we’re hoping that the outreach department and all of the schools are growing like crazy for that reason to provide support to local schools.

    Dr. Sharp: That’s great.

    May: And to provide a little bit of clarity, not every state has a school for the blind, but there are quite a number of states that have a public or a state-sponsored school for the blind or a school for the deaf or a school for blind and deaf. And there are also private educational organizations that serve the sensory impaired population. So there’s quite a variety of programs but when we’re talking about the Texas School for the Blind and the California School for the Blind who are public state agencies, so students and families do not pay to attend these [00:36:00] kinds of institutions.

    Dr. Sharp: I got you. Thanks for making that distinction. That’s important. Well, I know that we touched on the importance of collaboration just a few minutes ago. Let’s dive into that. Stephanie, do you want to start us off?

    Stephanie: Sure. I guess I jumped the gun a little bit. I talked about it a bit before, but in previous presentations we’ve done in the past, we talk about the steps to assessment and the TVI being super integral throughout and collaborating.

    We highly recommend that before anyone else has started in our assessment, the TVI needs to jump in and begin with the functional vision assessment and learning media assessment and share that [00:37:00] with all of the other colleagues because you certainly wouldn’t want to do a test in large print when that student is a braille reader or do it with the incorrect style of magnification. There are so many different things that could happen there.

    So there’s the process of getting that assessment started, but it’s really important to know it’s unusual. And then I think in a lot of other IEP teams, everyone works individually and they’re all in a little bubble and then they bring it to the table, whereas with a student with a visual impairment, it’s so all-encompassing to everything that they’re doing that the collaboration is just key.

    And so in areas that a TVI can assist is [00:38:00] really with the classroom well, or anything having to do with learning media, but also don’t forget about technology. These days, everything leads back to assistive technology. So some areas have an AT specialist who may jump in and provide that assessment, but I would always encourage that again, the TVI be part of that because the equipment used by our students is so specialized.

    And then the other thing I want to make sure to mention here is we talk a lot about the expanded core curriculum. And so, I think it’s important that in this collaboration that everyone understands, that all the specialists understand that piece.

    There are these nine areas that have been identified as the expanded core curriculum. And these are the things that students with visual impairments aren’t going to get just [00:39:00] generally, but where other students with sight would. For example compensatory learning which is braille and sensory needs, and then there’s assistive technology, there’s orientation and mobility. Social skills is a big one where there’s some fabulous overlap with the testing that a psychologist would do.

    So again, it’s really important to collaborate to make sure we don’t want to double test a student but we can work together to cover those skills. And I know that even May and I often in our assessments we’ll work together on some of these things because we’re both doing them. So self-determination is another one that I know psychologists touch on. So that’s why this career education, all of these are overlap and we want to work together on.

    Dr. Sharp: Nice. As we were prepping for the interview, I know that we’ve talked about how there are so many folks that could be involved in this process. [00:40:00] You touched on two. What other specialties or people might jump into this process here?

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    May: There could be a lot of people and we hope that many different specialists would be involved to share their knowledge. So another position that we mentioned a little bit earlier is orientation and mobility. Orientation and mobility specialists help with many different aspects of the ECC or expanded core curriculum that Stephanie just mentioned, not just navigating their environment but helping them to figure out how to navigate their independent living skills, which is big for our students with visual impairments.

    We want them to be as independent as possible. Many times for children with visual impairments, it’s so easy for adults to do things for them and try to be helpful but unfortunately, being overly helpful to the point where our students tend to become passive and not engaging [00:42:00] actively with their environment and with the daily routines that other students might learn how to do through incidental learning or just learning that happens through observation and practice. Stephanie, do you want to add anything about O and M?

    Stephanie: No. I think that they’re definitely a key person that is part of that assessment, and just others. Oftentimes we see APE missing from the group. And that’s a really important piece for our students. Certainly, speech and language pathologists. Oftentimes, I think when students early on are tested, this visual impairment piece, for whatever reason, things get attributed to the visual impairment rather than recognizing that there’s going to be the same incidents of [00:43:00] other needs and disabilities within the visually impaired population as in any other population.

    So SLP is often a huge person on the caseload. PT, OT, any of these providers. AT I mentioned. And that’s one that you definitely want to collaborate with because our needs are so great. And then even just a deaf and hard of hearing teacher and knowing that if a student… and this is an important piece because we see this missing a lot. I might be going a little off, but I want to throw it in that, if a student has a visual impairment and a hearing impairment, you want to be sure to classify them as deaf-blind because once you’ve got two sensory impairments going, there are now even more things that we need to look at. We’re talking even low vision or mild sensory loss. I’ve worked with a lot of teams that are [00:44:00] reluctant to or don’t understand that, and they feel like they’re not going to put that DHOH designation because they’re not totally deaf or completely blind, but even just some mild of either one, that’s a big consideration.

    Dr. Sharp: Sure.

    May: Sorry, I just want to add a little bit to the deaf-blind comment is exactly what Stephanie was saying. It’s not just the addition of visual impairment plus having a hearing impairment. It’s better to conceptualize it as a multiplication type of challenge where there are all these other challenges that might present for a student who has multiple sensory impairments.

    I know that we talked a little bit about having OT. OTs can be really important for our students because they might be sensory seeking or get overwhelmed. And I know that Terese, you probably have a lot of experience working with these [00:45:00] children who are identified as BI and autism. But students who are identified strictly as having a visual impairment have many different accommodations that they might benefit from that might not be as apparent as a student who might be very externalizing in their sensory behaviors.

    The same with speech-language pathologists in districts who might think, oh, they scored average for a receptive and expressive language, their articulation is fine, their fluency is fine, but that pragmatic language component and applying pragmatic linguist skills can be really challenging for our students. They might be able to answer a question on a test and know what the right answer is for a social scenario but to actually apply it, that’s like a whole other story.

    Dr. Sharp: Right. Well, that makes me think too, we should probably circle back to Terese to talk about some of the overlaps with medical complexity and other diagnoses. We [00:46:00] skipped over that part which is pretty important. Can you speak to that? You mentioned autism certainly, but I know there are other considerations as well.

    Dr. Terese: There are quite a few. I mean, Carol alluded a little bit to the traumatic brain injury population. So if a child’s had a stroke and things. We have a number of children that are in the vision population that are ex preemies. And so that population may have had brain bleeds or abnormalities in terms of neurological development. There’s a particular eye condition called optic nerve hypoplasia and ONH is a brain-based visual impairment. So, even though it’s called optic nerve hypoplasia, it really goes beyond that. So they may be absent or within Corpus callosum, there’s often the pituitary and hypothalamus involved.

    And so if we’re not making sure that the family and the child are connected with neurology and endocrinology and things because these kids [00:47:00] often have low growth or abnormal growth development in addition to diabetes insipidus, in addition to difficulties with their cortisol system, their adrenal system is off. And that’s just one example.

    The complexity of children with vision impairments now is really magnified. We talk about, and this is not a derogatory statement but kind of vanilla blind where it was just blindness that was the characteristic of the population, but now many of the children that we’re servicing in the field of special education have multiple and competing and complex disabilities. It’s less often the case that it’s just a vision impairment at this point.

    Dr. Sharp: Sure. Could you give any more detail around, I’m particularly interested in the overlap with autism and just because I work with a lot of those kids. It’s fairly common.

    [00:48:00] Dr. Terese: Well, there are at least 14 eye conditions that have a subgroup of kids with autism spectrum disorders in them. And so there’s a genetic component to that. So a number of children with optic nerve hypoplasia, if you take transparency of the brain of a child with optic nerve hypoplasia and the transparency of a child with an autistic brain and overlap them, there’s a tremendous amount of overlap with some of those kids. So that’s why the kids may look autistic-like but in fact, have autism spectrum disorders because of the abnormalities in the brain.

    Some other eye conditions are anophthalmia or microphthalmia, children with albinism, which may be surprising, optic nerve hypoplasia, something called Leber congenital amaurosis, Apert syndrome. So those are just a few of the eye conditions that have at least a subgroup of kids with spectrum disorders on them.

    And it’s really, I think one of the things Marnee was mentioning earlier in terms [00:49:00] of the Texas school, where the kids have echolalia or the kids had stereotypic behaviors, that by themselves does not autism make. It’s really, what’s the cluster and what’s the intervention that’s been provided, and what’s the developmental trajectory that those kids have had because even typically developing children go through a period of echolalia, but it’s protracted and it’s also the difficulties with transitions and change and rigidities and things like that. So it’s the whole package that people need to really take into account. I’ll talk more about that in our next session.

    Dr. Sharp: Okay. 

    Dr. Terese: Does that help?

    Dr. Sharp: Absolutely. I have so many questions, but I know we have a lot of content too, so we’ll say, I’ll try and keep track in case we don’t get to some of these. I will ask though specifically, and you tell me if this is jumping the gun and getting into our next episode, but I am particularly interested in the overlap with echolalia, and like you said, stereotype behaviors. [00:50:00] This is a naive question, but what’s the etiology of that in visually impaired kids if they’re not autistic as well? What accounts for that?

    Dr. Terese: In terms of echolalia, it’s some of the language development where kids are really practicing and rehearsing and trying to get a sense of what the connection is with the real world. But I think in terms of the stereotypic behavior, some of the children if they’re not adequately stimulated or they have some cognitive and significant cognitive impairments, a lot of kids will engage in more repetitive kinds of behaviors. So I think you have to look at what some of the basis is and are they getting adequate stimulation from their environment and from the people in their environment too.

    The other thing I always think about Jeremy is, are we teaching these children how to use their hands? Because if we’re not teaching them how to use their hands and how to explore things systematically, then what they’re going to do [00:51:00] is a repetitive action. So I never assume a child knows what to do with their hands unless I’ve deliberately taught them what to do with them, how to engage with materials, and how to explore their environment effectively. So I think it’s really incumbent on us to rule that out as another possibility.

    Dr. Sharp: Sure. That’s a great point. Thank you.

    Dr. Terese: You’re welcome.

    Dr. Sharp: So before we close the loop one collaboration, was there anything else to say, any other folks, or anything to highlight in the collaborative realm for us to be aware of before we move to actually plan these evaluations?

    May: I just wanted to add that families are so resilient to the whole collaboration process too. Sometimes we might just focus on who is in the educational environment, but our families might see one view or snapshot of a child in the school setting and have a completely different child, either more or less independent [00:52:00] at home. So it’s really so important to have the parents be active members of the evaluation process and to do if available observations of students within the school setting and if possible home and community setting. I know for orientation and mobility specialists, that is one part of their evaluation is to see them in multiple settings.

    Dr. Terese: Absolutely. Jeremy, I travel around to do evaluations on children with vision impairments. And before I see a child, I ask families and schools to send me video clips because it’s really incredibly powerful to get a sense of what the child is doing before I ever show up outside. And I have the luxury of going to wherever the children are located as opposed to having an office-based practice. So it’s really invaluable to get a variety of video clips of the child’s family.

    Stephanie: We pretty much do the [00:53:00] same whenever we do a field assessment. Now, our assessments are outside of the IEP process but we do, do a home visit and sometimes we see a completely different child at home than we do at school. 100% that is super important.

    Dr. Sharp: Right. Well, it sounds like there’s a parallel there with typically developing children we see. That happens, right? Terese, I’m going to ask you one very practical question. I’m imagining listeners might be curious about this. Are you traveling to different states to do these evaluations?

    Dr. Terese: Yes.

    Dr. Sharp: And so are you just licensed in a lot of states or how does that work?

    Dr. Terese: I’m licensed in Maine and in New Hampshire and certified in Maine, New Hampshire, and Connecticut. So I have multiple certifications and I’m trucking mostly in New England. But what I’ve done is I’ve also checked the licensing boards in other locations to see, [00:54:00] like, in Massachusetts, I can work 12 calendar days without being licensed or certified so long as I’m licensed somewhere else. So I’ve checked those kinds of things. It also took me to Ireland, which was really exciting and I didn’t need to worry about licensing there.

    Dr. Sharp: Oh, yeah. That’s great. Well, thanks for indulging that question. Like I said, I think some people are probably interested in the logistics of how you might do something like that.

    Well, let’s talk about the evaluation process. It just makes me think as we get into this topic of the… I can only remember one individual in our practice who came in, who was visually impaired. I did end up consulting with my colleague at Texas School for the Blind, who consulted with some other folks down there. And I think we did our best, but it was admittedly not ideal. This was an adult. So, I’m curious [00:55:00] for those of us out there who might be trying to plan an evaluation, where do we even start? What’s important to know? Marnee, do you want to start us off?

    Marnee: Yeah, I’m just thinking boy, in a break time, that’s tricky. I guess the first thing is to really reassure yourself that it is possible. I have people calling all the time and saying, I’ve got a student who’s visually impaired and we know it’s impossible because there are no instruments normed on kids who are visually impaired. And so I think starting out and talking about the issue of normative data and then talking about what are some of the resources will provide that level of reassurance.

    It’s interesting because they have had multiple attempts to develop an instrument that is actually for children who are visually impaired. [00:56:00] They’ve all been unsuccessful for some of the reasons that we’ve talked about because it is such a complex, very different population. And so, the instruments that they have developed typically indicated that all children who are visually impaired are within the genius range because I’ve done such a good job of picking out things that kids who are visually impaired do well. I found one last night that came from England that I have in my files, it was done in 1945. And it was just as unsuccessful. It was commissioned by the Royal Institute of the Blind.

    I think what is the common belief among people who work in the field of visually impaired is that you accommodate prior to the administration of the test according to the [00:57:00] guidelines that we’ll talk about in a bit, but what we want to do is to compare children to other individuals without a visual impairment because they’ll be participating in the world without those types of changes in normative data.

    Right now, I don’t think there’s a huge move toward developing another test that’s normed upon students that are blind. Somebody in the group may disagree with me on that, and they may have information that I don’t. But I think all of us who’ve worked extensively have spent our time trying to talk about ways- how do you test to get the best information possible?

    One of the things that are referenced on some of the materials that I think it’s important for anyone who’s going to be testing a child with a visual impairment is the position paper on guidelines for testing [00:58:00] children who are visually impaired. And it’s on the website of the American Printing House for the Blind. Carol and I were 2 of the 3 people that did it. And so, what we tried to put in there is everything that we know that will make your testing a more successful and representative snapshot of this child.

    I think the other thing that we always caution about when we’re talking about whatever resource you use is that you need to realize number one is going to take a lot more time because you have to spend more time in observation and interviewing people who are familiar with the child, and then it’s going to be important that you interpret the data very cautiously. You’re not getting the same thing that you would get if you sat down with a child who’s 8 years old and who lives in the Midwest in the administered IQ test. But that’s the same with [00:59:00] a lot of kids that we test. When I test children at the Texas Valley, I’m getting a real different population. So it’s incumbent upon us to be sensitive to that.

    So I would say before you start testing, check out the chapter that Carol will be talking about, check out the position paper on APH for your preparation. The other thing I would say is, be certain to check on the website for the American Printing House for the Blind. They do have a number of instruments that are available for purchase that has gone through a rigorous process of accommodation so that the publisher has cooperated, a vision specialist has cooperated, and there’s information on a number of tests that are available there. So be sure you know what your sources are.

    And then [01:00:00] the next thing you need to do is to pay attention to all of the training that’s available both on this podcast, and some of the websites that are out there. They’ll give you a lot of information to do the best possible job.

    Dr. Sharp: Fantastic.

    Marnee: That’s sort of a complex subject.

    Dr. Sharp: Absolutely. We’re off to a great start here. Thanks. So where should we hit next? Should we head to Carol with adapting the assessment process, or do we want to talk about measures first? What do you all think makes the most sense?

    May: Probably measures.

    Dr. Sharp: Okay. Let’s do measures.

    Stephanie: So, May, you’re on choosing measures?

    May: Okay. So we’re going to sound a little bit like a broken record but a lot of [01:01:00] it will depend on the particular student since there is so much variability in the standard presentation. And of course, like Stephanie was mentioning, we want to start with the functional vision assessment and learning media assessment results and seeing what media is their primary or secondary learning media so that when we’re looking at our stimulus that we’re presenting to students, we’re using the appropriate type because then you’re no longer testing what the test is intending to test if you’re using inappropriate media.

    And when we’re looking at, like Marnee mentioned, APH- the American Printing House for the Blind, has different tasks that are already adapted in large print or braille. Some of those include the Boehm. The Boehm Preschool is available in a tactical [01:02:00] version and a large image version as well as the Boehm for kindergarten to 2nd grade. The Boehm is are getting updated. So that should be out at the end of this here or maybe early into next year, 2022, but they’re hoping to have the full Boehm comprehensive inventory of basic skills.

    Dr. Sharp: May, can I jump in and ask you to backtrack one acronym to the Boehm. Can you spell that for people?

    May: Oh, B-O-E-H-M. And this one might be one that a lot of early intervention or school psychologists or speech-language pathologists, working with the littles, the younger children might be more familiar with. There is on Pearson, the standard kit but you don’t need the standard kit to use the adaptive [01:03:00] versions, but for many of the other standard kits or standardized tests, you do need the standardized test kits in addition to the adaptive version. You cannot administer like the WJ Woodcock-Johnson IV has a large print in braille version. If you just buy the adaptive version from the American Printing House for the Blind, you will not be able to administer the whole thing. You need to have a standard kit too. So for those who are in private practice, this is an additional cost that you need to consider. And Terese I see you, I’m here, just go ahead.

    Dr. Terese: I just wanted to jump in because I happened to be living in Maine and many of the states have regional or statewide lending libraries. And so, what the psychologist if they’re asked to evaluate a child with a vision impairment and they need to use the Woodcock-Johnson and they happened to own the print version of the Woodcock-Johnson, you can see if the TVI has access to one that they could [01:04:00] be loaning out. It will be shipped free matter for the blind. You can use it, and then you can return it back to the center where you’ve gotten the loaner from.

    So before people start to go, oh my God, I can’t afford to spend $50 on a protocol and $300 on the test kit because I’ve already spent $1000 on the Woodcock-Johnson, backup and see whether the teacher of the visually impaired has access to a loaner kit through the resource library if they’re affiliated with a statewide lending library. So at least that’s what we’re doing in Maine.

    Dr. Sharp: That’s great.

    May: Another thing to consider is that it takes a long time to adapt these standardized tests to braille and print versus, and I know Carol was involved with the braille adaptation for the Woodcock-Johnson before. A lot of times when our tests come out with new additions, it takes quite a bit of [01:05:00] time, several years before an adaptive version is available. Because of copyright law, we are not able to just ask our IT guy, Hey, can you just make this in braille for me? It’s like, nope. Technically you cannot. So you do have to wait unless it’s informal. And Carol, I see your mouth moving. So do you want to add something?

    Dr. Carol: There are people who do it. I was one of them years ago and adapted things on my own. I knew the braille and I knew the intent of the items which is really important having both perspectives as a TVI and a school psychologist. And we did it because that was a better test than what was available. And there are people doing it all over the country and sometimes doing it wrong. I remember borrowing an early privately done Woodcock-Johnson and [01:06:00] there were the visual, the published test had a picture of three fish. Well, how was that represented? They brailled the words fish, fish, fish. How many fish are they? Well, the child who didn’t know how to read fish.

    May: Yeah, there’s a whole lot that goes into adapting materials and whether your student has been exposed to tactile graphics or where are they in learning braille? Is it contracted or uncontracted? There are all these various components.

    Stephanie: And I was just going to throw in even one more wrench in the puzzle is that, and someone can give me the date, but we switched braille codes. We used to use what’s called the English Braille American Edition, EBAE, and [01:07:00] now 2016, is that right? I don’t know. I think so. We switched to UEB Unified English Braille, and there is a difference in the codes. So if you have old editions of Brailled Assessments, they are likely in EBAE which means that your younger students who have grown up with UEB are not going to be able to read those. So yet another reason.

    I see Jeremy shaking his head. You should’ve seen when it first came out that you really need to talk to your TVIs about what edition, and even more so, one more runch would be when we start talking about math. And if you were assessing your students in math, there are two codes being used in the United States. There’s the Nemeth Braille Code and there’s UEB math code. And different states are doing different [01:08:00] things, different students within a state may be using a different code. So it’s really important that you’re talking to your TVI and using the right code. And if your young student doesn’t know all of the contractions yet, that is another thing you need to understand.

    May: As you might have already gathered, all these different subtopics that we have talked about could be whole-day training. I know that Carol, Terese, and Marnee have done multiple-day training on each of these topics. So we’re giving a very brief glimpse into the world of assessing children with visual impairments but there’s so much complexity that’s involved. So you can see why it takes so much time to prepare for an evaluation, to administer an evaluation, and then later to interpret it.

    Dr. Sharp: Oh, absolutely. I’m [01:09:00] again going to try to channel listeners and guess what they might be thinking, which is what if we see students or we have the possibility of seeing a kid or a student who is visually impaired, there are no other obvious resources to get this assessment done, what do we do? Is something better than nothing? Do we look for other reasons? Is the family somewhere else? How might a practitioner handle that?

    May: And I think going back to Marnee about reading that APH- American Printing House for the Blind document, that guidance document that Carol and Marnee wrote along with another colleague, it really spells the best [01:10:00] practices of what you should do in certain scenarios because there’s not just one straight answer- this is the test that you should do for all kids with VI.

    So, if your students have some level of functional vision and use their vision for learning, even though they have a visual impairment, they might be primarily visual learners. And so there’s a lot of different considerations.

    I know that Carol and Marnee can probably give you more specific examples but I would say that is a great starting place for all practitioners. When you get a student who has visual impairments, review that document and that might already help to ease some anxieties and answer some questions and talk to the teacher of visual impairments to help give you an idea. What’s on paper about a visual impairment is one thing versus what the teacher can share, what the family can share will give you a much more meaningful picture of, okay, this is where I should direct my attention in this [01:11:00] evaluation. Carol and Marnee, I’ll hand it off to you.

    Marnee: I’d say, just even go in and observe the child so that you demystify them because otherwise it’s just a child that has a vision impairment and that along can go, Ooh, what am I going to do? As supposed to, well, it may not be so difficult because look at how they’re functioning in the classroom and checking in with the TVI about all the particulars and the learning media assessment on the functional vision assessment and things that way. But just seeing the child function can demystify some of it.

    Dr. Sharp: That’s great.

    Stephanie: And I’ll just throw out to that one of the values of COVID and what we all just went through is there’s so much out there now in terms of webinars. So this group got together because we were all doing webinars on the same topic right around the same time. So just researching what’s out there. There are fabulous handouts. And these are kinds of webinars [01:12:00] that talked specifically about psychoeducational assessments for students with visual impairments.

    Dr. Sharp: Sure. We have so many links in the show notes. There are going to be a lot of resources for folks to check out after these episodes.

    May: And I really appreciate Terese mentioning observations. I think bringing it back to basics of what are best practices for evaluations in general, […], record review, interview, observation, then testing, it’s like, you really need to follow that process of evaluating procedure. It’s essential because if you just jump in and start assessing, a lot of times you are not going to be meaningful for the student.

    So doing those record reviews thoroughly, interviewing family members and all service providers and teachers involved, and doing multiple observations of the student in various settings because a student [01:13:00] really might be able to navigate and interact with an environment in one learning classroom one way, and then if they’re like a high school or middle school or go to like the lab for chemistry or another class and be much less independent.

    Dr. Sharp: Right. Well, I feel like we have covered a lot of ground and at the same time just scratched the surface. Anything before we start to wrap up this first part of the series? Anything else on prepping for the evaluation, things we need to consider?

    Dr. Terese: Yeah, I think just the one standard thing which is true for any evaluation is before people are picking instruments, it’s like, what is the question that you want to be answered as a result of the evaluation? And that would be a guiding principle no matter who we have in front of us, whether it’s a child with a vision impairment or a child with a learning disability. That’s going to guide people in terms of selecting [01:14:00] instruments in addition to the functional vision assessment and the learning media assessments.

    May: Carol, did you want to speak more about using non-standardized assessments or adapting assessments?

    Dr. Carol: The adaptation. I started teaching the visually impaired in the early 70s. And my primary tool was a handful of flair pens for darkening dittos. Does anybody remember purple dittos? Marnee, of course, you would. And teachers were running dittos not on ordinary paper but on newsprint. And often you could better read the reverse side of the page backward than you could the front of the page because they were doing it on two sides of [01:15:00] newsprint because it was so much cheaper than an ordinary paper.

    And so, I had a note come home from a teacher of one of my children saying, please have your child complete this math worksheet. And I said, when she comes home with a copy, either one of us can read, I’d be happy to do that. But then we got enlarging copiers in the schools and the first one was in my husband’s office and I went, oh yes. And so I would pay the company that he worked for a nickel a page for being able to enlarge on their copier. And then they started to show up in the schools. So yes, we were enlarging things.

    And sometimes that was in the student’s favor. I remember, anybody remembers the Stanford Binet-4 [01:16:00] Stanford Binet-4 was my go-to instrument at the time. Now it’s got a lot of confound between the visual and verbal. So the Stanford Binet-5 was not my favorite instrument. I remember that a student I was testing could not see the visual absurdities, the picture absurdities, and they had a picture of somebody eating peas on a knife. They had a picture of, what’s wrong with this picture? What’s silly about it? And the student could not answer the one that showed the saw being upside down and the teeth were up because he couldn’t see that the teeth were up. But when I took the test booklet over to the CCTV, the video magnifier, he could immediately answer that [01:17:00] and many more successive questions.

    So that’s what I mean. And at the time, his reading group was sitting on the floor with an aide writing words on a whiteboard that was not close enough to any of the students for them to see it well. And so, the fact that he could answer questions on the visual absurdities, the picture absurdities led me to recommend that he receives his reading instruction using the video magnifier.

    Dr. Sharp: Yeah, there are so many ways that you have to be flexible and pay attention to these environmental factors.

    Dr. Carol: Yes.

    Dr. Sharp: Speaking of that, I wonder, could we maybe talk just a little bit about setting up the room for an assessment with a visually impaired kid and things we might need to consider there?

    [01:18:00] Stephanie: Yeah. So some things to consider are lighting number one. And again, you’ll get a lot of this information from the functional vision assessment. Lighting can play a big part. It can help students out using reading stands, using what we often refer to as a CCTV which is an electronic magnifier, using bold line paper, felt pens. Ask your student to bring with them any devices that they may be using in the classroom.

    One caution about even just a CCTV is you want to make sure that the student has experience using the device that you are presenting them with. So you don’t want to sit a student down at a brand new [01:19:00] device even though you think, oh, it’s a magnifier and they use a magnifier, but if they’ve never used that particular magnifier, they shouldn’t use it for the first time during an assessment. There are different levels of magnification. There are different styles of electronic magnifiers. So you want to make sure that they have familiarity with that. If a student does all of their work on a computer, make sure they bring their computer to be used.

    In terms of enlarging materials, you want to make sure that you’re not just enlarging it. All students have different font sizes that they require. It could be anywhere from what’s often referred to as standard large print.  I don’t think it’s called standard for our students with visual impairment because there is no standard. It could be anywhere from 24 points on that to 60 point font. I mean, if it’s that big, there’s no more discussion that would need to happen with a team [01:20:00] because we would say, well, the world is not written in 60 point font, but again, you want to use what the student is used to using and making sure to show the enlarged copy to the TVI.

    Is this the correct size? Because I think there’s confusion sometimes between, oh I’m going to blow it up 150% on the copy machine, that doesn’t mean it’s getting to the right font size.

    Clutter is another thing to look at. If a student is often being presented with materials with pieces of it being occluded, meaning blocked out, you’d want to present the material in that same way.

    Color can be an issue. Oftentimes, students may not be able to see a yellow highlight or yellow writing. So if it’s testing that’s in color, you want to make sure that [01:21:00] that’s accessible to students. May brought up tactile graphics or even just graphics because learning to read tactile graphics is a process. And so you want to make sure your student understands how to read a tactile graphic. And all these little things may change standardization. And so it may affect scoring which the tester needs to realize but you also want to make sure you’re testing in a way that the student can access it.

    One more thing would be not only clutter on the page but clutter in the student’s environment. So students with CVI, cortical visual impairment, or cerebral visual impairment are very sensitive to other stimuli around them. So even just if you’re testing within an environment with a really busy board, that can distract them from the material in [01:22:00] front of them. So being sure to test in a way that there are no external stimuli or auditory stimuli. If there’s a lot of noise going on outside of the classroom or within the room you’re testing, that can definitely affect the results that you’re seeing.

    May: And looking at adaptations like, Stephanie, touched on. We want to make sure we’re not increasing the demands or decreasing demands with this adaptation and really think, are you still testing what the task was designed to test? Like when we’re looking at, I’ve gotten questions about the CTOPP and blowing up the stimulus pages for rapid number naming or rapid letter naming. If the student has to scroll across the screen, the whole stimulus isn’t visual of being able to be visible [01:23:00] on one screen, does that change the task because now they have to have the motor component of like scrolling or moving a knob to see? Or when you have answer options displayed where you have to move back and forth between different sides of the screen to see all of the different answer options for an item, now you’re increasing the working memory load of a task too.

    So there are all these different components. So a lot of times when you’re using visuals, and I’ll let others chime in if they disagree, but when you’re using visuals with students with visual impairments, you’ve got to be very careful in considering whether it is more meaningful to use that information to inform what kind of accommodations or modifications they might need in their educational setting. And how meaningful that standardized number is. Is it a valid score to report or not? And a lot of times, like I know I would usually defer to reporting things [01:24:00] qualitatively when we’re using all these different…

    Dr. Terese: I was just saying the modifications or adaptations. Yeah.

    May: Yeah. And there are many different, we talked a little bit about when we’re using standardized measures and now due to copyright law, we can’t adopt them into different formats. Also, curriculum-based measurements and informal measurements can provide a lot of meaningful information as well. And there are many different writing skills and checklists that are made specifically for students with visual impairments that do not produce standard scores but still provide lots of meaningful information.

    So I feel like a lot of psychologists who are new to the world of assessing students with VI might go and try to stick to the tried and true standardized assessment tools that they’re very familiar with when there are all these other ways of getting meaningful information that [01:25:00] like as Terese said, are you answering the referral question? What is the most important part? And a lot of times it’s like, how can we actively engage the student and help promote their independence?

    Dr. Sharp: Yes. Well, I think you’re doing a great job of giving us a teaser for the next part of our series, and talking about how do we interpret the data and results and so forth. So in the interest of keeping people’s interest piqued, maybe this is a good place to wrap up. So next time we are going to dive more into interpreting the test results and different deep dives into specific presenting concerns and comorbidities with learning disorders and autism and so forth.

    So this has been great. It felt like a whirlwind for me. And I appreciate y’all just sharing all this information with us. And hopefully, I [01:26:00] think we set the stage for a more in-depth discussion about some of these topics to come. So I appreciate y’all’s time. I look forward to talking again here pretty soon for the second part of our series. Thank you all.

    May: Thank you.

    Dr. Terese: Thank you.

    Dr. Carol: Bye.

    Dr. Sharp: All right, y’all, thanks as always for listening to the podcast. I hope you found this informative. Next time, like we mentioned in the recording, we’ll dive deeper into specific comorbidities and how to interpret data when we’re also evaluating for both visual impairment and learning disorders, autism, intellectual disability, and considerations for deaf-blind children as well. So there’s a lot to be had in the next one in addition to the material here. All right, I’ll leave you for now. Catch you next time.[01:27:00]

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